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Getting together with a research request

TheCatWoman

Afte seeing another request for participants in research about ASC in young people, I thought 'again, why is there never anything aimed at people my age?' There are so many of us latelings here and I feel that we're being forgotten AGAIN, as we have through so much of our lives.

I was wondering if there would be any interest in writing a joint letter to research organisations asking for research into our difficulties and experiences and as we move into old age how that will affect the services we recieve, from what I can see organisations who deal with older people haven't a clue about autism. This needs to change.

How about it folks? I'm happy to write the letter, but would love to include your concerns, to do it as a group, a group will have more power, by weight of numbers alone, but also because we experience the world differently. I would of course post the proposed letter here for your comments before sending it

Parents

  • I agree! 

    Wenn Lawson has written an interesting book on autism and older populations. It draws on some of the research that is out there and highlights the need for further research. I think Wenn is also talking at the NAS professionals conference this year on the subject of aging and autism. 

    I will certainly be happy to input and sign the letter.

    A good start would be research to collect the concerns and views of the older autistic population. What are the barriers to wellbeing and what enhances wellbeing.  I have a lot of concerns about a lack of awareness of autism in palliative care. 

Reply

  • I agree! 

    Wenn Lawson has written an interesting book on autism and older populations. It draws on some of the research that is out there and highlights the need for further research. I think Wenn is also talking at the NAS professionals conference this year on the subject of aging and autism. 

    I will certainly be happy to input and sign the letter.

    A good start would be research to collect the concerns and views of the older autistic population. What are the barriers to wellbeing and what enhances wellbeing.  I have a lot of concerns about a lack of awareness of autism in palliative care. 

Children
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