• Replies 3 replies
  • Subscribers 81 subscribers
  • Views 55 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Advice for adult seeking diagnosis with no family input

NB1

Hello, I've just joined the community as I'm on the waiting list for a diagnosis. I'm in my late 40s and realise so much makes sense now I'm looking into autism. 

I know that most assessment providers ask a parent, other family member or long-standing friend for their input but I don't have anyone like that I could ask so wondered if anyone on here has any advice - perhaps a provider you've used and could recommend who was able to do the assessment without external input. 

I'm on the waiting list via Right to Choose but can easily ask to change if there's another organisation that will be sympathetic.

Thank you for any advice,

Nicholas 

Parents

  • Hello  

    Welcome to the community.

    I can’t recommend a provider as I am not in a ‘Right to Choose’ part of the UK. I was on a long waiting list for an NHS autism sssessment but I didn’t want to wait years so I opted for a private assessment that would be recognised by my GP and the NHS Autism Clinic in my area. 

    NB1 said:
    I know that most assessment providers ask a parent, other family member or long-standing friend for their input

    That was my understanding too. My assessor explained that those undergoing assessment should provide such a person but they recognise that not all adults, especially older adults, would have a family member or someone else who has known them well since early life. They were happy to assess me and diagnosed me with ASD.

    I had researched several autism clinics in my area and most said a similar thing except for one clinic. That clinic was hesitant and couldn’t confirm one way or the other and they didn’t get back to me about it.  

    It would be nonsensical to exclude diagnosis for adults just because they don’t have a person who has known them well since childhood, especially since the nature of autism for some people means that they can spend much of their time enjoying solitary pursuits. 

Reply

  • Hello  

    Welcome to the community.

    I can’t recommend a provider as I am not in a ‘Right to Choose’ part of the UK. I was on a long waiting list for an NHS autism sssessment but I didn’t want to wait years so I opted for a private assessment that would be recognised by my GP and the NHS Autism Clinic in my area. 

    NB1 said:
    I know that most assessment providers ask a parent, other family member or long-standing friend for their input

    That was my understanding too. My assessor explained that those undergoing assessment should provide such a person but they recognise that not all adults, especially older adults, would have a family member or someone else who has known them well since early life. They were happy to assess me and diagnosed me with ASD.

    I had researched several autism clinics in my area and most said a similar thing except for one clinic. That clinic was hesitant and couldn’t confirm one way or the other and they didn’t get back to me about it.  

    It would be nonsensical to exclude diagnosis for adults just because they don’t have a person who has known them well since childhood, especially since the nature of autism for some people means that they can spend much of their time enjoying solitary pursuits. 

Children
No Data