Late diagnosis + realisation + identity

Hi, 

I'm in my early 20s and I strongly suspect that I am autistic (AuDHD) . The online tests I have taken say I am, but that does not completely reassure me. I have seen a GP and I am on a waiting list but I don't feel confident that I will be able to secure a test, or afford one through a private provider. I was hoping someone might be able to offer some advice. 

It started about half a year ago. Someone who has spent a lot of time with autistic people said they strongly suspect that I have autism. Their comment didn't register immediately but once I started looking back at my experiences, the penny dropped like an anvil. The more I looked into it, the more I was shocked that the ways I experienced life were not unique to me. I never really thought about them, collectively, as a symptom of a border feature so the surveys surprisingly helped a bunch once I started researching. I had seen CAMHS for most of my teen years and had a fairly tumultuous upbringing (ended up in foster care (only child to) ) moving around a lot (I think around 12+ times now) so I didn't have the stability to clock it or to be around other people for long enough for them to ( I can't maintain relationships). CAMHS diagnosed me with depression and anxiety, which is what I believed was the source of feeling like a square on a circle, but even though I got better at managing my mental health, the strange feeling persisted (Is there a word for this?). 

I am deeply confused because I'm not sure if my experiences are a result of trauma or neurodiversity. The fact that I suspect I have both autistic and ADHD traits makes it even more confusing (+ the frustration that it took so long to register). This confusion, confusingly coming from clarity that I did not have before,  is having a bit of a frustrating and negative impact on my career and relationships. I have masked my entire life so nothing feels real and I'm second-guessing everything, I am trying to find and do things that make me more comfortable which I feel like might be isolate me , and I have lost a lot of confidence because I'm overthinking more than I used to. 

I wanted to ask what helped. Does a formal diagnosis help? How long does it take and what does it take to reframe yourself in a way that is not unhealthy? Could I be wrong about myself? How do you learn ( because functioning in a neurotypical world will require sacrifices) what to 'encourage' yourself to do? Is it all trial and error (I have a horrible feeling it might be) or are there (free) resources out there? I genuinely feel like I have been set back to 0 so I am questioning everything. I would greatly appreciate any suggestions or insights. Thank you for taking the time to read this Slight smile

Parents
  • Hey! 

    Always being on the move isn't good for anyone, but I would try and avoid putting myself down or seeing myself as different to people that ~have it perfect.~ Not to be too dark but anyone can get hit by a lorry, break a nail, lose pets etc. 

    An autism diagnosis/suspicion is your best shot to really set some time aside and ask yourself simple questions, like do you enjoy eating meals, looking at colourful sunsets, listening to music, whatever. I mean you sort of have to be attuned to how your body processes sounds, smells, light, colours, temperatures, whether it responds to pain and hunger etc, so that you can optimise your lifestyle. 

    I'd say whatever you have available, use it to your advantage. If you're sensitive to lights, get the tea candles out. If you have a good hearing, pay attention to noises you like and don't like, choose songs to listen to more carefully, and don't turn up the volume to the maximum. 

    I've been in this game for two weeks, have spent a total of zero pounds, and have discovered that setting aside even ten minutes or half an hour each day to pretend to be a crystal basking in tea candle lights and being immersed in ambient music does the job. 

    All I'm saying is work around it, and if you do self-destructive stuff, stop. Cause the worst about autism is, you're young now, you think you're invincible, and you will regret thinking that later. So just be mindful of your teeth, don't go out in the winter without a coat on, don't walk around when it's raining without an umbrella, that kind of thing. Just because you don't feel it it doesn't mean it won't harm you. 

    For instance I don't feel emotions of any kind but my hands will start dancing when I'm about to do something remarkably self-destructive. Idk if this is other people also but my body contains the signs my brain ought to, so like, stomach goes up in knots, all of a sudden all motor functioning goes out of the window, it's like physical signs saying 'the system strongly disapproves, path mustn't be taken'. 

    Re: diagnosis - I'm autistic as *** and they missed me at 16. What I'd suggest if you do do it, mind that some people have to try several times before they get the correct evaluation. The people that do the diagnosis are also human, don't make them tell you who you are and aren't. But a diagnosis sets you up for support, so there's that. I'd probably look up adult social care in your area and speak with them. Some councils run social work surgeries, maybe they can work it out for you. And talk to your GP. 

Reply
  • Hey! 

    Always being on the move isn't good for anyone, but I would try and avoid putting myself down or seeing myself as different to people that ~have it perfect.~ Not to be too dark but anyone can get hit by a lorry, break a nail, lose pets etc. 

    An autism diagnosis/suspicion is your best shot to really set some time aside and ask yourself simple questions, like do you enjoy eating meals, looking at colourful sunsets, listening to music, whatever. I mean you sort of have to be attuned to how your body processes sounds, smells, light, colours, temperatures, whether it responds to pain and hunger etc, so that you can optimise your lifestyle. 

    I'd say whatever you have available, use it to your advantage. If you're sensitive to lights, get the tea candles out. If you have a good hearing, pay attention to noises you like and don't like, choose songs to listen to more carefully, and don't turn up the volume to the maximum. 

    I've been in this game for two weeks, have spent a total of zero pounds, and have discovered that setting aside even ten minutes or half an hour each day to pretend to be a crystal basking in tea candle lights and being immersed in ambient music does the job. 

    All I'm saying is work around it, and if you do self-destructive stuff, stop. Cause the worst about autism is, you're young now, you think you're invincible, and you will regret thinking that later. So just be mindful of your teeth, don't go out in the winter without a coat on, don't walk around when it's raining without an umbrella, that kind of thing. Just because you don't feel it it doesn't mean it won't harm you. 

    For instance I don't feel emotions of any kind but my hands will start dancing when I'm about to do something remarkably self-destructive. Idk if this is other people also but my body contains the signs my brain ought to, so like, stomach goes up in knots, all of a sudden all motor functioning goes out of the window, it's like physical signs saying 'the system strongly disapproves, path mustn't be taken'. 

    Re: diagnosis - I'm autistic as *** and they missed me at 16. What I'd suggest if you do do it, mind that some people have to try several times before they get the correct evaluation. The people that do the diagnosis are also human, don't make them tell you who you are and aren't. But a diagnosis sets you up for support, so there's that. I'd probably look up adult social care in your area and speak with them. Some councils run social work surgeries, maybe they can work it out for you. And talk to your GP. 

Children
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