diagnosis

more or less 2 months since my late diagnosis.  is it wrong to wonder why i bothered, yes now i have a formal diagnosis but  has it has changed much.  im still struggling to manage, still not getting the support i need and still feeling like im on the wrong planet.  i dont know what i expected if anything but i guess i was hoping things would feel easier.  knowing im autistic doesnt change the world around me and how i struggle with it and its making me feel low.   anyone else felt the same after late diagnosis

Parents
  • It is a sad state of affairs that there is little or no meaningful support after a late diagnosis. You now have on one hand the information of who you are and why *** happened in your life. On the other hand it is almost as if you now are teleported to different world knowing you are different but that society as a whole does not care. Hence the tag of being a 'Lateling'

    I was relieved to find out I was not broken but the post diagnosis events have almost broke me. I ask for help at work, was refused effectively ending my career in my fifties. I am now in the process of an employment tribunal claim against my employers.

    Sometimes I wish for the ignorance of not knowing and be back to doing the career that I always wanted to do since I left school, which now has been so cruelly taken from me because I am autistic and dared to ask for reasonable adjustments.

    It is such a heavy burden to carry on especially in todays' economic climate.

  • I felt relief too, I was diagnosed in 2010 aged 50, but it frustrates me that there's so little help or understanding and the attitude is that you've been ok up until now so you can ust carry on. Many of us haven't been ok and continue not to be ok and have nowhere to go with it.

    I went to a local group that covers the whole of N, Wales, they asked me what help I'd like and I asked what they offered, they said they coiuldn't make suggestions and that I had to ask. When I mentioned things like filling in forms the response was luke warm, suggestions were made about CAB and the like, which all in all didn't feel very helpful. They couldn't help me with digital skills, after listening to me describe my problems on the phone for 20 mins the woman still said they do most stuff via zoom calls and I wondered what she thought I'd been talking about and if she'd actually listened at all.

    Being diagnosed later in life reminds me of being diagnosed with arthritis, oh theres nothing we can do apart from pain killers until everythings so knackered I might get a place on the waiting list for a replacement. 

Reply
  • I felt relief too, I was diagnosed in 2010 aged 50, but it frustrates me that there's so little help or understanding and the attitude is that you've been ok up until now so you can ust carry on. Many of us haven't been ok and continue not to be ok and have nowhere to go with it.

    I went to a local group that covers the whole of N, Wales, they asked me what help I'd like and I asked what they offered, they said they coiuldn't make suggestions and that I had to ask. When I mentioned things like filling in forms the response was luke warm, suggestions were made about CAB and the like, which all in all didn't feel very helpful. They couldn't help me with digital skills, after listening to me describe my problems on the phone for 20 mins the woman still said they do most stuff via zoom calls and I wondered what she thought I'd been talking about and if she'd actually listened at all.

    Being diagnosed later in life reminds me of being diagnosed with arthritis, oh theres nothing we can do apart from pain killers until everythings so knackered I might get a place on the waiting list for a replacement. 

Children
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