Help needed, advice or suggestions

This is my first post here. Im really lost and need help. We live in the UK, just outside London

My eldest son, B is autistic, He was diagnosed aged 9 and is now 27

B was considered 'high functioning' when he was young and although I tried very hard I was never able to get any special help or support for him in school ( that was 17 years ago) 

he managed ok, but always had problems with friendships and peer relationships and as he gt older issues with stay. He completed school with 3 GCSE, not including English. he went t college but was asked to leave, for poor attendance. 

Now he is 27, he has had employment but is usually 'let go' for various reasons. Until recently he has refused to tell employers he is autistic so has had no reasonable adjustments made. 

He is living at home, in a Den in the Garden. The problems are -

1. hygiene, he does not wash often enough r properly. I dontthink he ever cleans his teeth. washing clothes / bed sheets similar.

2. Squalor - he lives in such a mess ( never throws anything away) leaves half eaten food around till it gets mouldy, pees in bottles and just leaves them. 2 months ago I had to get a specialist cleaning company out to sanitise his living space. It cost £1600

3. Financial - he receives UC, but spends it all on cigarettes/ alcohol / junk food. I provide 'normal' food and pay for heating /lighting/ internet . his shoes have holes in, his clothes are in rags, but he cannot / will not do any budgeting or listen t offers of help

4. Organistatin. he has very little he needs to do, but he can't motivate himself to do even that. He has a support worked from a charity, but he misses meetings etc.

I am really worried about what will happen to him. I had an adult social care assessment wh agreed he was a vulnerable adult and should be entitled to support, but provided nothing. We applied for housing who rejected him outright, we applied for PIP who also rejected his claim.

I feel completely stuck, he will not / can't sort out anything , but he can't stay here forever supported by him mum...

Parents
  • I don't have anything really to offer in the way of how to engage with your son, but I do have some feedback on PIP which may help financially/open doors elsewhere:

    My wife and I have applied for DLA/PIP about 4 times, and it goes:

    1) Get rejected

    2) Mandatory reconsideration 

    3) Get rejected again

    4) Go to tribunal 

    5) Win

    Get help with the process if you can and push as hard as you have the energy for, the DWP are not there to help, they are there to prevent you from getting help.

Reply
  • I don't have anything really to offer in the way of how to engage with your son, but I do have some feedback on PIP which may help financially/open doors elsewhere:

    My wife and I have applied for DLA/PIP about 4 times, and it goes:

    1) Get rejected

    2) Mandatory reconsideration 

    3) Get rejected again

    4) Go to tribunal 

    5) Win

    Get help with the process if you can and push as hard as you have the energy for, the DWP are not there to help, they are there to prevent you from getting help.

Children
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