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The Autism Assessment

Homebird

Yesterday I was looking at a useful link to details about the DSM assessment. I am on the waiting list, however many years left to wait for an assessment probably. 

I have a question for anyone who has a diagnosis. Over a year ago I completed the forms and other information, including evidence from my memory of early experiences. I also had a meeting following this where I was asked lots of questions and following that I was told they had enough evidence to go on the waiting list. 

My question is regarding the formal assessment. When my son had his, we watched from another room and this assessment involved activities and conversation. That bit is fine, but as an adult they have to be convinced that this was apparent in childhood. I was wondering therefore if I would likely be asked again for examples at that time. If so I need to keep a note of them when I remember, as I am likely to forget when I am there.

Parents

  • Hi, school reports can help, I had some but they mainly just said I was quiet. I took a couple of photos into the assessment of me as a toddler, in the photos my mother was trying to hold me, I wasn’t having any of it. I was asked questions about how I played as a child, I didn’t play with toys, Meccano and Lego was more me, mostly activities I could do on my own. I didn’t play with other children. I did write some notes down beforehand, my wife also attended the second part with me, she helped with how I’m actually like to live with and some of the problems I’ve had. They asked about school life.

    The dreaded frog book did also make an appearance. My assessment was NHS, I felt quite at ease, it seemed more like an informal chat. One person mainly spoke to me while another observed me. I was still glad when it was over.

  • in reply to Roy

    I'm wondering if an email from my father to me would be enough for the assessor? He described to me, how I was as a toddler. In another email my father sent his photo of him playing a guitar. 

    I also have school reports and they only say I was well behaved and thats it, also school notes show somehow my spikey profile, highest notes at some subjects and very low at other ones. I have sort of reports from Sommer camps that say i cried a lot. Then I have photos of my own works and projects related to my special interests. I also have some copies of my old pictures. And I have good memory.

    I'm wondering, if this would be enough as an evidence of me being me since ever.

  • in reply to Alien0n3arth

    That sounds like quite a lot. You could be up front with whoever was going to assess you, and say this is your evidence for childhood (you could write down all your childhood memories to go with it), and they'll advice you on proceeding. If the first place you go to doesn't, try somewhere else. 

    It's like finding someone who understands what adult autism looks like. If you find a good assessor who knows their stuff on the different presentations, it makes it all easier.

  • in reply to Cinnabar_wing

    My therapist could also provide some insight. 

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