Hello,
I’m an autistic patient advocating for myself at my GP surgery and wanted to share some difficulties I’ve had with reasonable adjustments.
Some of my requests, like clear communication, interim support, or understanding what adjustments can be reliably provided, haven’t always been addressed. This has caused stress, confusion, and uncertainty.
For example:
-
I asked them not to use vague language. They said “we will try,” but trying isn’t enough when unclear communication harms me.
-
I asked them to clarify their written communication style. They asked why I needed clarification.
-
I requested interim measures to prevent risks. They asked why I needed them despite me explaining my concerns. I understand that full profiles or care plans may be best handled by specialists, but interim adjustments could help me access care safely.
-
When I struggled on the phone with a receptionist, I was told to terminate the call, which feels like a barrier.
If you’ve experienced similar barriers at your GP, how did you manage them or get support? If not, what advice would you give me?