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Right to choose assessment

Remigirl

Hi all, I’ a 30 year old female going through the assessment process.

I had my ADOS assessment today - which all in all I found absolutely horrendous and have no idea if if I answered things as I should have (even though she kept saying there’s was no right or wrong). 

Anyway, ADIR part is tomorrow and my mum is the informant. I was given the option on whether to attend or not and I originally thought not but I feel that my Mum won’t remember everything as I would have. I spoke with the assessor today and she did say it was my choice but I could provide some insight on things I experienced that she couldn’t.

I was told that the question won’t be directly aimed at me and I might feel like a third wheel, but I feel like I should be there just incase.

Has anyone else sat in with the informant on the ADIR? What was your experience like?

Parents

  • Hi! I might be able to help a little as I've just been through the right to choose assessment process last month and ran into the same situation (mine was online so bear in mind whether that might differ if yours is or isn't online)

    My Mum was also my informant for the ADIR and she was concerned she might not remember everything and so I turned up with her too to the assessment, I briefed the assessor at the start when I got there that I was just there in case she might not remember something and I could help give an answer if I did remember, such as things I might remember while I was at school for example, because my mum wouldn't have been present in those moments.

    I also chatted with my Mum before the assessment to let her know that if she didn't remember something, she could say something like "I'm not sure on that/I don't remember, [my name] do you remember/can you answer?" so that I didn't cut in or interrupt at points where it wasn't my turn to talk (I find it hard to know when on a regular day, especially more so when I know this is the informant's assessment) At a few points the assessor did directly ask me a question first.

    It doesn't hurt to go to the ADIR too, as you say the worst that can happen is you'll feel a little like a third wheel, maybe a little bored at times because a lot of questions are aimed towards the informant, but I found it helped both mine and my mum's peace of mind that we both attended.

    Good luck with the ADIR tomorrow!

  • in reply to dbhfan28

    Thank you so much this is so helpful. My assessment was online today and is tomorrow too so it sounds like we both went through the same thing. 

    I know that being given the choice is meant to make you feel more at ease but I think in some way it makes me unsure on what I should do, so I really do appreciate your input. 

    my mum is on board with everything and is really open so I will definitely have that conversation to make sure she prompts me if she is unsure as I was definitely worried about when to interject/looking like I am taking over. 

    Thank you so much for your help! 

    How was your feedback phone call process afterwards if you don’t mind me asking? If you have had it that it. 

  • in reply to Remigirl

    No problem, I'm glad I could help! My feedback call (I had that last week) was booked at the same time as booking the ADOS and ADIR so I knew the date in advance, they rang from a private/withheld number and it lasted about ten minutes mostly because it was just them telling me what the outcome was, and recommending some tips post-diagnosis which I had more time to sit down and read once I got the report, which was sent to me the next evening. I imagine that call could last longer for other people (they said up to half an hour) but after waiting 3 years for an assessment I've already found out a lot of information and resources, so I wager if you had more questions to ask them that they'll have time for that too.

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  • in reply to Remigirl

    No problem, I'm glad I could help! My feedback call (I had that last week) was booked at the same time as booking the ADOS and ADIR so I knew the date in advance, they rang from a private/withheld number and it lasted about ten minutes mostly because it was just them telling me what the outcome was, and recommending some tips post-diagnosis which I had more time to sit down and read once I got the report, which was sent to me the next evening. I imagine that call could last longer for other people (they said up to half an hour) but after waiting 3 years for an assessment I've already found out a lot of information and resources, so I wager if you had more questions to ask them that they'll have time for that too.

Children
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