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Assessment delays

pintsizepirate

Hi everyone

Looking for some advice here. I contacted the company my GP referred me to for an autism assessment this week to get an update. Assessment at the latest was due on January 21st. They simply replied, all assessments will now be at least a year's wait. 
They accepted the referral on the 21st of July, stating a 4-6 month wait. It took 7 months to get the GP to complete the referral. In my head, I've already waited a year. I've written to all involved: GP, Council ICB, South London & Maudsley for a referral to their National Adult ADHD and Autism Psychology Service, my council's screening service but nobody is responding. What do I do? What are my options? This was through Right to Choose. If I hadn't contacted anyone, I would still be in the dark next year. 
My life has been on hold waiting for this. My mental and physical health is being affected as has my marriage which has now broken down because of my traits. I already have an ADHD diagnosis. I'm at my wits end! Surely, they can't abandon patients like this? Don't they have a duty of care? 
Hoping somebody here may have some guidance or advice as to what my options are as the powers that be are proving to be useless. 
Many thanks in advance 
joanne
Parents

  • If someone is hit by a bus, A/E will patch them up fast.  For everything else, the waiting times are really long.  

    So for neurodiverse people, we arent in constant pain or have a life threatening illness.  And there isn't a cure for what we have.  With limited resources, they have tough decisions to make and I totally get that.

    I had a private ASD and ADHD assessment which cost 3k.  It has been worth it for me, because with a formal diagnosis, I can ask my employer for reasonable adjustments at work.

  • in reply to Dyanne891

    I did the same and got it done quickly privately. I needed to know what was wrong at the time so I could decide what to do about my job and life. I had to know if I had burnout and how to fix it and how to deal with intrusive thoughts of the past.

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