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Reasonable Adjustments in Healthcare

NikkiHastie

Hi All,

I wonder if anyone has any advice on what to do? Im significantly struggling to get reasonable adjustments in place for accessible healthcare. Ive been diagnosed with autism, complex trauma, complex ptsd and have physical health conditions like m.e also. 

Ive sent my autism passport, my reasonable adjustments documents to hospital via learning disability nurse and just cannot get simple adjustments  in place like the change from insistence on telephone calls to emails, quiet waiting area, etc meaning i just cannot engage with the service. Im experiencing autistic burnout now in addition due to the chronic stress, emotional distress, systemic barriers. 

The problem is now I need 4 teeth taken out via hospital whilst in burnout with no adjustments. I just cannot manage the procedure its too overwhelming. Ive asked for a referral to community dental services which do specialise in disabled people, autism, anxiety etc but noone knows how to do it and been told that teeth out at hospital is only option.  Problem is I cannot cope with the procedure which now means disengaged from services.  Ive not got a dentist as no NHS in my area so they can't refer me to specialist community dental services.

ts a bit of a panic in truth as i just don't know what else to do. This has been ongoing since last Dec. Any advice would be greatly appreciated. Just at the end of my tether with it all and am feeling very unwell from all the chronic stress, emotional distress and systemic barriers. 

Any advice, support or personal experience will be greatly appreciated. 

  • Thank you for sharing this. It's nice to know I'm not alone. I have just posted about this too (Difficulty Accessing Reasonable Adjustments at My GP). It's very distressing when an NHS GP practice does not respect the Equality Act 2010. The only thing within my power is to put in complaints.

    It is really sad that you can no longer engage with the service. Have you considered therapy to help deal with the issues you've mentioned, like overwhelm and distress?