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Wes Streeting's move against autism - NAS - time to step up

mrs.snooks

I'm aware that this discussion may get a little heated, but I hope that it stays away from getting too much so. I do not mean to cause offense or lead to any arguments. So here goes.

I woke up to this morning's headlines: 

Health Secretary Wes Streeting is to launch an independent review into rising demand for mental health, ADHD, and autism services in England.

I haven't added the link to the article as I know this will trigger a delay to having this posted. But I'm thinking you will have seen this this morning. 

I am so angry on so many levels. And I am hoping that the NAS is angry too and can respond to his move with a firm and robust response. Because.

Now, I am going to call it out. Mr Streeting, I think that this is what I would be calling: Discrimination. Discrimination with a big, fat capital D. Discrimination against a marginalised group. A vulnerable group. That deserves your protection and that you should have our back. As the HEALTH secretary. Shame on you. Shame on you.

I may not respond to any responses to my thread, if it gets too heated. And I am happy for the thread to get locked or removed.

It's time to Step Up.

Parents

  • I just wanted to quote   said on another post here (I hope this is okay as I did not want to derail the other post)

    • I think it's important for us older ones to get diagnosed, even if we don't get any help right now, if it's on our medical records then it could effect how we're treated after something like a stroke or if we need care or develope dementia

    This for me sums up why the current crisis in waiting times or the postcode lottery of being diagnosed on the NHS at all, is actually crucial. Having it on your record if you get to the point where you can't effectively advocate for yourself? If you have others round you that can make sure it's known you might be okay without a diagnosis, but for the vast number who don't or don't have supportive families, it is important as it *should* effect your care. 

    This was something I hadn't considered before.

  • in reply to Cinnabar_wing
    Cinnabar_wing said:
    Having it on your record if you get to the point where you can't effectively advocate for yourself?

    Although I agree in principle I have twice in recent times told a hospital doctor I am autistic. 

    Their replies:

    1. Are you? It must be very mild. 

    2. Are you? You don't look it.

  • in reply to B

    Are the doctors you're talking about specialists in things like stroke recovery, geriatric care or dementia? Because my understanding is that these doctors are very interested in things like learning difficulties and ND. But I agree I've met with some stunning ignorance from doctors and other medical staff.

    The other thing is groups like AGEUK, which is actually AGEUK for England Scotland, Wales and North Wales have seperate groups, have no real idea about ND and learning difficulties, it's not thier focus, so they will have no idea of whats coming down the line as more of us, particularly latelings become old and need more help. Just like theres a gap between CAMHS and adult services, once you get to 60 theres another cliff edge which nobody seems to know or care about.

  • in reply to B

    I think this is something we should agitate about, write to our health trusts, or MP's etc whenever we encounter it, it's appalling.

    I think this is something NAS should be speaking out about too.

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