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Wes Streeting's move against autism - NAS - time to step up

mrs.snooks

I'm aware that this discussion may get a little heated, but I hope that it stays away from getting too much so. I do not mean to cause offense or lead to any arguments. So here goes.

I woke up to this morning's headlines: 

Health Secretary Wes Streeting is to launch an independent review into rising demand for mental health, ADHD, and autism services in England.

I haven't added the link to the article as I know this will trigger a delay to having this posted. But I'm thinking you will have seen this this morning. 

I am so angry on so many levels. And I am hoping that the NAS is angry too and can respond to his move with a firm and robust response. Because.

Now, I am going to call it out. Mr Streeting, I think that this is what I would be calling: Discrimination. Discrimination with a big, fat capital D. Discrimination against a marginalised group. A vulnerable group. That deserves your protection and that you should have our back. As the HEALTH secretary. Shame on you. Shame on you.

I may not respond to any responses to my thread, if it gets too heated. And I am happy for the thread to get locked or removed.

It's time to Step Up.

Parents

  • I just wanted to quote   said on another post here (I hope this is okay as I did not want to derail the other post)

    • I think it's important for us older ones to get diagnosed, even if we don't get any help right now, if it's on our medical records then it could effect how we're treated after something like a stroke or if we need care or develope dementia

    This for me sums up why the current crisis in waiting times or the postcode lottery of being diagnosed on the NHS at all, is actually crucial. Having it on your record if you get to the point where you can't effectively advocate for yourself? If you have others round you that can make sure it's known you might be okay without a diagnosis, but for the vast number who don't or don't have supportive families, it is important as it *should* effect your care. 

    This was something I hadn't considered before.

  • in reply to Cinnabar_wing
    Cinnabar_wing said:
    it is important as it *should* effect your care. 

    Again, although I agree, my experience of care of the elderly including those with dementia is that money talks.

    If you can afford private care there is a chance you may be listened to.

    The rest is pretty chaotic and 'care' is often a misnomer. 

  • in reply to B

    My friend was a psychiatric nurse specialising in dementia care and assessement and we've talked about this sort of thing quite a lot, he says things like an autism diagnosis will be taken into consideration, as will a diagnosis of learning difficulties,  theres no point in asking someone to do something like a simple sum or remember a string of numbers or letters if they've never been able to to do it, it would give a totally false perspective.

    You're right though, that money talks and you often get the care you can afford, it's also a postcode lottery. There are many care homes that can't cope with dementia patients, especially in the later stages, where they need more specialist nursing care.

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  • in reply to B

    My friend was a psychiatric nurse specialising in dementia care and assessement and we've talked about this sort of thing quite a lot, he says things like an autism diagnosis will be taken into consideration, as will a diagnosis of learning difficulties,  theres no point in asking someone to do something like a simple sum or remember a string of numbers or letters if they've never been able to to do it, it would give a totally false perspective.

    You're right though, that money talks and you often get the care you can afford, it's also a postcode lottery. There are many care homes that can't cope with dementia patients, especially in the later stages, where they need more specialist nursing care.

Children
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