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Benefits of a formal diagnosis?

Danjo

I am a 54 year old man and have done the ASQ and other online tests and have scored consistently in the autism ranges. A lot of my life experiences make more sense now - including extended bouts of anxiety and depression, insomnia, situational anxiety, introceptive confusion and others. I am wondering now about the benefits of a formal diagnosis. I’d welcome advice from others.

Parents

  • It depends on where you are at in your life. Especially as it relates to family and relatives. Diagnosed at 52. A day doesn't go by that my SO doesn't berate me for the limitations of autism... Its a weapon always at the ready.... If you weren't so autistic maybe we could have friends... if you weren't so autistic maybe you could have been present for your children... if you weren't so autistic maybe you could do something with your life. Why don't you try and get fixed? And on and on. So for me I regret getting a formal diagnosis. If you are surrounded by loving family members full of grace and patience, or are a loner in this world without being shackled to ones who look for weaknesses and try to gaslight any remaining sanity out of you, then a formal diagnosis may not be so bad. 

  • in reply to LifeWasBetterIn69

    I’m so sorry to hear this- I’ve also had some bad experiences after telling some people but overall I am glad I got diagnosed- I think maybe there are two points here 1) should you get diagnosed? And 2) who should you tell? I wish I had been a bit more cautious about the telling part. 

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