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How am I meant to explain to people that I am waiting for a diagnosis ?

SarJakittenwizard

I am on universal credit and meant to be looking for retail work but I don't believe that I have the capacity to work in a role like that, or most roles tbh. Problem is that for almost a year I've been waiting for an autism (ASD) diagnosis and I don't know what/who to turn to. If I tell Jobcentre about my diagnosis process they might take my off UC since I'd then be claiming I'm unable to look for work for the designated time a week. I've been told I might get an answer by February 2026 at the earlier but I'm struggling to keep up with what I'm constantly being asked to do by the jobcentre. Is there anything I can do for the time being or do I just need to suck it up for now? The only people who currently know about my diagnosis journey is me and my dad.

Parents
  • SarJakittenwizard said:
    Problem is that for almost a year I've been waiting for an autism (ASD) diagnosis and I don't know what/who to turn to.

    The wait list if many years on the NHS at the moment in most places from what people have reported on here.

    You do have the option of asking your GP to use the "Right To Choose" path which means they will pay to send you to a private assessment.

    This only applies to England I believe - I know Scotland does not allow this.

    It should reduce the wait time to months instead of years - but waiting lists are constantly growing and it varies region to region.

    That would be how I would do it in your situation.

Reply
  • SarJakittenwizard said:
    Problem is that for almost a year I've been waiting for an autism (ASD) diagnosis and I don't know what/who to turn to.

    The wait list if many years on the NHS at the moment in most places from what people have reported on here.

    You do have the option of asking your GP to use the "Right To Choose" path which means they will pay to send you to a private assessment.

    This only applies to England I believe - I know Scotland does not allow this.

    It should reduce the wait time to months instead of years - but waiting lists are constantly growing and it varies region to region.

    That would be how I would do it in your situation.

Children
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