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Autism appointment

Expecto_Patronum

There is a new autism hub in my area. I have an appointment with them tomorrow. Not sure what support, if any, they can give me but I figured it's worth a try. I'm really bad at these situations though. They ask me what's going on for me and I forget all words in the English language and just stammer some meaningless sounds. I've written a list of the things I want to bring up but that doesn't mean the words will come out of my mouth. I find broad questions really difficult to answer. I'm not sure exactly what they're asking and what they want to know and I struggle to formulate my thoughts in any kind of logical order. Anybody got any advice how to manage this?

Parents

  • Thanks for the advice. It really wasn't too bad. She asked fairly short to the point questions and it got easier to talk to her as it went on. There was no pushing for what she thought I needed. She would make suggestions and then guage my reaction. She was very honest that they are a small company and she doesn't have a whole array of services to offer me. But she has some links to other organisations that may be able to support. She is also happy to be a go between for me for services. For example, my current struggle trying to get an answer out of NHS for my next steps therapy wise. She says they can do a bit of nagging on my behalf which at the very least takes a bit of the strain off of me. She is also happy to email back and forth if any other issues arise in the mean time.

    It's not a miraculous service that suddenly has all the answers but probably the best thing I've come across so far.

Reply

  • Thanks for the advice. It really wasn't too bad. She asked fairly short to the point questions and it got easier to talk to her as it went on. There was no pushing for what she thought I needed. She would make suggestions and then guage my reaction. She was very honest that they are a small company and she doesn't have a whole array of services to offer me. But she has some links to other organisations that may be able to support. She is also happy to be a go between for me for services. For example, my current struggle trying to get an answer out of NHS for my next steps therapy wise. She says they can do a bit of nagging on my behalf which at the very least takes a bit of the strain off of me. She is also happy to email back and forth if any other issues arise in the mean time.

    It's not a miraculous service that suddenly has all the answers but probably the best thing I've come across so far.

Children
  • in reply to Expecto_Patronum

    Its great to hear it was a positive experience. Thanks for the feedback.

    Expecto_Patronum said:
    She asked fairly short to the point questions and it got easier to talk to her as it went on. There was no pushing for what she thought I needed.

    If you have the energy I would recommend giving feedback to the organisation to say that the service was great and that you felt it was helpful. This sort of thing helps them realise that they are on the right track, can give the person a pat on the back (great for their motivation) and helps keep the focus on this sort of approach.

    Thanks for bringing a positive story about your experience - with so many nightmares being reported here it is nice that there are some doing it right.