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Medication

Arbor

Hi this is an advocacy question. I have quitepian prescribed to keep my psychosis under control and its vital for my sleep and thus rest to enable me to function. The doctor without warning just put me on a 7day prescription from 28 days. Reason i had failed to complete a blood test required to allow doc to maintain my prescrpition of this vital meds. Okso i really stuggle keeping myc28 days repeat prescription administration let alone now every 7 days, thus i keep missing the day i should re order. Plus the requirements to interact now have quadrupled and my anxiety off the deep end due to missing my repeat prescription requirements thus left now between prescription medless. Consequently loss of sleep further reduced functioning etc etc negative cycle. Tried to self advocate with doc surgery and was coldly told self refer to mental health services as we dont have to prescribe if you dont get blood test. So i askedcif they could help and send me the bloods form but week latercstill no blood formscin post. Reminder email to them sent. I am experiencing significant reductions in capacitybto function now due to worrying i wont pass a blood test. Worrybif i dont pass i will loose this med that since being prescribed has changed my life for better. I also had an exceptionally bad blood experience last time i was in hosptal due to autsim related dehydration as i forget to drink. I experienced 9 attempts to get blood. So sensorial issues r preventing me engagj g with a blood test. I feel very much like this all exacerbates my difficulites and i am unable to access help due to the problems this creats makes me feel less than normally barrierd to seaking help due to socisl anxiety. I feel unable to solve this prblem and feel some how its very wrong to use my medication and subsequently feel like my very condition is being used against me. I know its important i get my bloods done but i feel like my doctor is punishing me and it feels cruel to use my health and worsenjng health to motivate me. Unfortunately the reality is i am less able and less motivated to bexable to perform the blood test than i would ordinarily be able to. It feels realy really cruel! Also my doctor now feels unsafe currently i just know i will eventually run out of motivation to keep the 7 day new prescription order requirements up and i will stop twking the meds voz i cant face the blood test or the confrontation with the doctor. I feel at the moment my dictor has a desire to get me off his books and i feel i cant go to him now for help.  Its 2am and i have no Quetiapine and i am wide awake and i know i will crash ! My pyshcosis is increasing as i am fast becoming u able to cope with intrusive thoughts due to sleep loss and erratic medication now. 

  • Hi

    It’s understandable that the sudden change to a 7-day prescription and the blood test requirement feels overwhelming, especially given your autism and previous traumatic experience. 

    It could be helpful to complete a Health Passport- you can read more about it here https://www.autism.org.uk/advice-and-guidance/topics/physical-health/my-health-passport. This provides a structured way for autistic people to communicate their needs to healthcare professionals. You could use it to explain your barriers to the GP, describe the impact on your mental health and that you’re willing to do the blood test but need adjustments.

    You could look into advocacy support. Search online for 'advocacy + [name of your Local Authority/Trust]'. Some autism friendly advocacy services are also listed in our Autism Services Directory.

    If you’re out of medication and experiencing psychosis symptoms, please seek urgent help. The National Autistic Society does not currently operate a crisis or emergency service. We advise you to contact 999 or any of the mental health crisis lines listed on our Urgent Help Page if you are at risk of immediate harm: https://www.autism.org.uk/what-we-do/help-and-support/urgent-help  

    If you are not at immediate risk of harm and it’s outside your GP hours, call 111 to reach the NHS 111 service. In England, Wales and Scotland there is now an option to speak with mental health professionals by selecting ‘option 2’ when calling NHS 111: https://www.nhs.uk/nhs-services/urgent-and-emergency-care-services/when-to-use-111/   

    All the best

    Sharon Mod

  • in reply to Expecto_Patronum

    Thanks for your support, I am ok a fell asleep thankfully at 5.30am so i just awoke and feel relatively ok so my 7day meds are ready to pick up as an email cane through at 9am this morning so i must have reordered them so only missed 2 days this time. I can sleep toniht now and then review getting some help ( not sure where from ) for the rest of the problem on Minday when i have recovered from the last 48 hours. Agreed re paranoia 

  • The blood test is to make sure you are physically ok to have the medication. They won't legally be able to keep prescribing it without. I don't really understand why they need to send you a form for the blood test though. Why can't they just book you a blood test.

    I am sorry they aren't being more understanding to your needs. I do wish neurodiversity was better catered to in medical facilities.

    I think your first aim needs to be to get your bloods done so you can get your prescription.

    It sounds like you might be experiencing some paranoia with regards to your doctor right now (I might be wrong).

    Then it may be worth trying to speak with the GP surgery when you're in a better place to see if there's any more support for you when ordering meds and blood tests etc.