Disclosure stories

Soooo...recently diagnosed...really pleased...validation..lots has clicked into place...relief etc etc...I'm wondering if I've had my head so deeply embedded in the autism world I forgot that some people aren't quite on the same wavelength.

me to friend: I've got some big news! I've just been diagnosed with autism

friend: **silence..mouth open..little bit of a "poor you" face** ...something happens in the room which diverts the conversation {hmmm, convenient}.

friend days later actually picks up conversation rather cautiously and finally says all the right things {"you're stil you..etc etc"}

other friend: still not addressed it but sends me links to random things they know i like {I'll just wait here and make it awkward}

This is so NOT how I expected it to go. I'm having a pause on the disclosures while I have a think! Anyone got a story to share?

Parents
  • You’ve got to somehow keep making small positive steps about you. I have not been employed by anyone now for over 12 years, everyday I still try something.  

    It’s not selfish to focus on yourself at a time like this until you feel more grounded. I am still at this stage currently and feeling extremely sensitive.

    It’s kind of awkward having conversations with people who know, while others are around. Because it complicates things, as if they were not complicated enough.

    Also because I spend about 90% of my time alone I have a lot of time to think about these things.

    If people can’t accept me as I am already they certainly are not going be any more forthcoming. At the same time I can suddenly see a slightly expanded range of differences in people I didn’t before. 

    Sometimes it is funny how other people behave towards me, but I am never cynical because I want to make the world better. If I can by changing people’s awareness. This can mean changing their perception of who I am, or what an autistic person can be.

    I could treat this (diagnosis day) like a Birthday each year I could celebrate it with me and the open minded people I know.  

    Even in the noise, my thoughts are still my own, today I was really struggling to keep the anxiety and stress under control beneath the surface. It felt looks my skin was burning until I got home and no one was looking at me. 

    What you know is valuable, don’t let it be undermined by people without sufficient empathy or understanding. By that I mean be very selective who you tell. I have only seen told theew close people and two of them are direct family.

    If you feel like you really need to tell someone speak to professional therapist or a Samaritan, until you are certain you can trust someone. 

Reply
  • You’ve got to somehow keep making small positive steps about you. I have not been employed by anyone now for over 12 years, everyday I still try something.  

    It’s not selfish to focus on yourself at a time like this until you feel more grounded. I am still at this stage currently and feeling extremely sensitive.

    It’s kind of awkward having conversations with people who know, while others are around. Because it complicates things, as if they were not complicated enough.

    Also because I spend about 90% of my time alone I have a lot of time to think about these things.

    If people can’t accept me as I am already they certainly are not going be any more forthcoming. At the same time I can suddenly see a slightly expanded range of differences in people I didn’t before. 

    Sometimes it is funny how other people behave towards me, but I am never cynical because I want to make the world better. If I can by changing people’s awareness. This can mean changing their perception of who I am, or what an autistic person can be.

    I could treat this (diagnosis day) like a Birthday each year I could celebrate it with me and the open minded people I know.  

    Even in the noise, my thoughts are still my own, today I was really struggling to keep the anxiety and stress under control beneath the surface. It felt looks my skin was burning until I got home and no one was looking at me. 

    What you know is valuable, don’t let it be undermined by people without sufficient empathy or understanding. By that I mean be very selective who you tell. I have only seen told theew close people and two of them are direct family.

    If you feel like you really need to tell someone speak to professional therapist or a Samaritan, until you are certain you can trust someone. 

Children
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