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I made an autism wheel profile thingie and would love your feedback

1970sCarbonUnit

I'm in my 40s and was formally diagnosed as having ASD last year. A few weeks ago, I was discussing this with some family members and trying to explain that ASD isn't just a straight line of "a little bit" to "very", and that everyone is different with their particular flavour of what they have going on, etc. I was utterly failing to communicate what I meant with my poor drawing skills, so I later put together my own autistic wheel tool to better explain to them.

Anyway, I showed it to some people, and they said they found it quite helpful, so I put it online at www.myautisticprofile.com for anyone to use freely.

This is not commercial. It's not a test or a diagnostic tool. It does not store or collect anyone's information. It's simply a tool for people to be able to describe their personal "spikey autistic profile" and communicate it to others, or simply to visualise this information for their own personal edification.

I tried my best to write a sensible set of categories and descriptions, but they are customisable if you want to tweak them just for yourself.

I would love to hear your feedback on my tool. Would you find this helpful in any way? Are there any improvements I should make to it? Is there anything which is "bad" about it that I should fix?

Don't forget to love each other. <3

x

Parents

  • I love graphs, I was just wondering do you get actual numbers to put into it when you get diagnosed? (I'm in the middle of one.)

  • in reply to Cinnabar_wing

    Thank you. I'd glad you like it.

    It's a little bit subjective I suppose.

    I'm in the process of creating a tutorial video with voice over with my sister (she's a video editor, so is much more capable at this kind of stuff than I am). I'll post a link to it when that is done.

    However, numbers 1-4 are loosely mapped to ASD level 1, numbers 5-7 are loosely mapped to ASD level 2, and numbers 8-10 are loosly mapped to ASD level 3. If you have a formal diagnosis letter, then perhaps you could use that in conjunction with your own experiences and opinions to decide what numbers to enter.

    I have added a new green "Help" button which tries to give some more information on this, and includes some links to well regarded online resources that might be able to offer some guideance.

    Sadly I've not been able to get any feedback from any health care professionals, so I'm a bit wary the wording I put on this tool to guide people on how to fill it out. I'm nervous that I might end up pathologising or unknowingly making the tool into something that is unhealthy or unhelpful in a personal health and developmental sense.

  • in reply to 1970sCarbonUnit

    I liked how you have two levels, as when stressed can drastically change your skill set. 

    This is probably beyond scope, but you could automate it slightly by having the questions along the top with the scale then mapping to the input. I script in python, so I appreciate this is more of a major overhaul, though it could be an alternate version for those that don't that method easier? Good fun to play with though!

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  • in reply to 1970sCarbonUnit

    I liked how you have two levels, as when stressed can drastically change your skill set. 

    This is probably beyond scope, but you could automate it slightly by having the questions along the top with the scale then mapping to the input. I script in python, so I appreciate this is more of a major overhaul, though it could be an alternate version for those that don't that method easier? Good fun to play with though!

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