Newly diagnosed

Finally been diagnosed by the NHS which only took 4 years wait time. Am 58 had several burnouts in the time it took to get diagnosed and a lifetime of false starts and misunderstanding. Feel huge sense of loss right now plus self doubt and questioning. Am I really. Not sure how to deal with this. Is it normal to feel lost after diagnosis?

Parents
  • Hi Patrick - welcome back and congratulations on your diagnosis!

    Following a diagnosis, it can be common for us to experience a lot of emotional dysregulation. Besides perhaps feeling some relief about now having an explanation for our past difficulties, this can also include working through a phase where we experience confusion, uncertainty, so-called "imposter syndrome", and/or (backward-focused) anger, frustration, grieving, and more. So please don't worry - it's normal! 

    As for many others here, my own diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of instant solutions for my difficulties.

    I second Anna Mod's recommendation to check out the NAS's articles on "after diagnosis". They include one covering how you might feel during the subsequent days / weeks / months:

    NAS - How you might feel after a diagnosis - includes perspectives from other autistics

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. If you prefer, depending on where you are in the UK, you may instead be able to self refer for talking therapy on the NHS.

    Before arranging it, you might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    This book also taught me some important principles and enabled me to make some immediate, helpful changes - perhaps you might find it useful, too:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

Reply
  • Hi Patrick - welcome back and congratulations on your diagnosis!

    Following a diagnosis, it can be common for us to experience a lot of emotional dysregulation. Besides perhaps feeling some relief about now having an explanation for our past difficulties, this can also include working through a phase where we experience confusion, uncertainty, so-called "imposter syndrome", and/or (backward-focused) anger, frustration, grieving, and more. So please don't worry - it's normal! 

    As for many others here, my own diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of instant solutions for my difficulties.

    I second Anna Mod's recommendation to check out the NAS's articles on "after diagnosis". They include one covering how you might feel during the subsequent days / weeks / months:

    NAS - How you might feel after a diagnosis - includes perspectives from other autistics

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. If you prefer, depending on where you are in the UK, you may instead be able to self refer for talking therapy on the NHS.

    Before arranging it, you might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    This book also taught me some important principles and enabled me to make some immediate, helpful changes - perhaps you might find it useful, too:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

Children
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