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Post-diagnosis mindset

alushjoyhand

Hello,

I received my diagnosis three weeks ago, aged 42.

The initial rush of identification arose and made me feel incredible. This subsided and I am now reflecting on the elements of how I function that I resent for their inefficiency.

For example, periods of relentless bleakness in the darker months of the year, disbelief in my ability to meaningfully connect to others, loss of humour and warmth, fixation on highly morbid topics and self-destructive information.

I presume this is both logical and valid, as I recompute all the assumptions about my understanding of myself and my relationship to the world that had been in place for many years. In short, I am scared and sad.

For other diagnosed adults, what was your experience? Have I missed an established thread to which I should instead refer? Is this the best place for such a question?

Advice welcome. Slight smile

Parents

  • Hello, I have also just been diagnosed, and after the initial first week or two of yeay, I got the answer and the missing piece to my puzzle. I had a sudden awaking of wow this puzzle is actually far bigger then first thought and there are now more questions then before which led me to start reading so much trying to make sense of it all only to go into a hyper obsession and now my body is shutting down and I feel exhausted and utterly overwhelmed and I have to slow myself down to be more patient something I am terrible at. I feel hyper alert of myself and surrounding all of a sudden analysing my behaviour and those of others. I am getting there understanding it will take time so be kind to yourself. I am lucky to have friend who has just been diagnosed too so support by finding similar people is definitely helping. So you are in the right place. Also look out for local communities were you are this could be helpful too. 

  • in reply to FishBerlin23

    I can portray my emotional response as ordering something that seemed incredible (for me, it'd be a pristine Amiga A500, rescued from a dusty old factory corner), and is actually disappointing once you have it opened and set up - what I expected (an immediate and lasting satisfaction) is not what I am experiencing (a sorrow that the things I resent are forever).

    This may well conform to the SARAH model/change curve - Shock, Anger, Resentment, Acceptance, Hope, it is too soon for me to reach the educated and (virtual) community-connected place of comfort.

    Thank you for your reply. As slow as the genuine gratitude may germinate, I feel it for all the replies that are arriving.

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  • in reply to FishBerlin23

    I can portray my emotional response as ordering something that seemed incredible (for me, it'd be a pristine Amiga A500, rescued from a dusty old factory corner), and is actually disappointing once you have it opened and set up - what I expected (an immediate and lasting satisfaction) is not what I am experiencing (a sorrow that the things I resent are forever).

    This may well conform to the SARAH model/change curve - Shock, Anger, Resentment, Acceptance, Hope, it is too soon for me to reach the educated and (virtual) community-connected place of comfort.

    Thank you for your reply. As slow as the genuine gratitude may germinate, I feel it for all the replies that are arriving.

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