Been told no diagnosis without an informant

Hi,

I posted before about getting an autism assessment as an older adult. I have had the initial consultation, but I am now stuck. They basically advised that, without an informant, it is very unlikely I will get any diagnosis, so they advise only proceeding with an informant. I have no relatives to act as informant, and as I have moved regularly, I also don't have a friendship where I've lived with someone or overlapped with them enough that they'd be capable of doing this. I actually don't know how to proceed, other than not to proceed. Any advice?

Parents Reply
  • No with a private clinic and at the initial assessment they said there were enough markers to proceed, but now say that it is very unlikely that an assessment can do anything without an informant. As noted above, I’m in the same boat as everyone else now, I haven’t had any one-to-one GP appointments except for essentials since pre-pandemic!

Children
  • Because this one is telling you that you won't get a diagnosis without an informant. Other clinics may run a different policy. My autism diagnosis was with a private clinic and I did not need an informant - they completely understood it wasn't possible in my situation. You can question this before deciding to go ahead. 

    All the GP does is make a referral. I did go to GP for my ADHD diagnosis. She ran through the standard questions needed for a referral to be made. Was happy I met the criteria and put in the referral. GPs do not decide whether you should be diagnosed or not. They simply have to tick a box in order to put through the referral.

  • But then why be wary of one private clinic but go with another? I’ve had 2 10-mins appointments since 2019 with different GPs. I don’t think I’ve ever seen the same GP more than once. I personally think that is a more unreliable judge than the initial hour interview with a clinical psychologist. 

  • I'd be wary with a private clinic. It's a heck of a lot of money to spend if they're saying it's unlikely. Is there another private clinic you could use if going to GP doesn't feel like an option?