none of my local gps take me seriously I dont know what to do

I was diagnosed a year ago, as an adult, and they wrote it onto my medical record as 'childhood autism' and i had to ask them to change it. at the beginning of the year i had a nasty accident where i fell and landed on my spine and i didnt want to call an ambulance and go to the hospital by myself so i just didnt go even though i was in lots of pain- i figured it would heal and if it didnt then i would go see a doctor. a couple of months after that the pain had reduced a bit but wasnt getting any better anymore and was making it hard to go about my day to day life, so i made an appointment. the first doctor i saw told me it was backache from not exercising enough and booked me in with a physical therapist which was not helpful. i went back again to a different doctor and asked if i could get an xray and he booked it but was so condescending to me the whole time and wrote things that i didnt even say in his notes, and also put "???????' after something i said instead of telling me how i could clarify further. He booked a scan for the upper part of my spine even though i said it was in the lower and i went and had it thinking maybe it would still see some of the damage but it has come back clear and i am still in so much pain i dont know what to do and i feel like this is going to make them take me even less seriously.

Im not looking for medical advice i am wondering if anyone has any tips for how to stand up for myself. i feel like as soon as i walk in they just see an autistic fat woman and assume im being dramatic and that my weight is the issue even though I literally fell down the stairs.

Parents
  • It is easy to get sidetracked at a GP's and they do not always ask the right questions. I always make a detailed written list of my symptoms and queries to take to the GPs. I have even handed it over rather than try to read it out. I would, therefore, advise that you write down the history of what happened, what it felt like at the time and precisely where and how your pain manifests at present. Plus, if certain positions and movements make it worse, if resting makes things worse or better etc. GPs often see people with back pain who are malingering and/or are seeking attention. I'm sure, as an autistic person, making appointments and attending them are very difficult for you and you would rather be anywhere else. Make this clear to the GP, that you really are in pain, otherwise you would definitely not be seeing them about it.

  • I have it on my diagnosis report that I appear to have  an atypical response to pain. It was suggested I share this with my GP. I have been telling them this for years, perhaps they will believe me now.

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