After diagnosis, what’s next?

I was diagnosed with autism about a month ago, I was asked if I wanted counselling but was also told that the waiting list is very long. I now have a leaflet but just seem to be at a loss as to being able to move forward.

I can see on the NHS app that my GP has received my report and a member of the clerical staff has filed it in my records. I don’t know if anyone has even read it. I thought the GP might have asked me in to discuss the future and basically how I’m getting on.

What advice has anyone else received?

Parents
  • As I expect you'll understand, I'm feeling rather wary about offering any advice, because I suspect that you might have seen it several times before. On the other hand, perhaps you either haven't, or you haven't paid it much attention, pending your own diagnosis (I certainly didn't want to get ahead of myself, by looking beyond the point of my assessment and assuming the outcome).

    So, with apologies in advance if any of this isn't new or helpful, I'll offer it anyway - and also because it might help others who are drawn to your thread over time. 

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough
    can see on the NHS app that my GP has received my report and a member of the clerical staff has filed it in my records. I don’t know if anyone has even read it. I thought the GP might have asked me in to discuss the future and basically how I’m getting on.

    I suggest requesting an appointment yourself, as this is perhaps otherwise unlikely to happen (it didn't for me). The "Formal support..." article also includes a link to a template letter that you could send to your GP in advance of your appointment. It can be used to request a personalised support plan, in line with NICE guidance.

    On a related note, you might also like to check whether your GP has added a reasonable adjustment flag to your NHS record, to help them and others within the NHS to be aware of the potential need to make accommodations that you might find helpful. 

    In respect of your (eventual) counselling, you might find this book helpful. It discusses various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint:

    The Autistic Survival Guide to Therapy

    I now have a leaflet but just seem to be at a loss as to being able to move forward.

    This book taught me some important principles and enabled me to make some immediate, helpful changes - perhaps you might also find it useful whilst you await support:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

  • Thank you Bunny, the advice is really kind of you. I will have a look this evening when I have more time. My wife often tells me off for dismissing help when it’s offered.

    Do you hear from O&U? They were very active here, I noticed they haven’t posted for a while.

  • Last thread O&U posted on they said that they needed a break. I think it’s plausible they might be back someday.

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