Does anybody here feel like they actually understand what it means to be autistic?

I was diagnosed a little over 20 years ago. I've spent pretty much my whole life trying to figure out what being autistic actually means. I still can't really define it even for my own sake. I talked a little to an American autistic person today. It was a bizarre experience, because they seemed to really understand their own condition. For me, autism has always been treated like an utter enigma even to professionals. I believe I am autistic, and I've been formally diagnosed. But I couldn't begin to explain what that means, or how it affects my life. I just know that I don't cope with stress well at all, and prefer living in a bubble to having varied life experiences.

I was asked what kind of autist I was, as if that's something I could possibly know. I feel like I've been living in a fog, and am only now learning that it might not be because autism is inherently vague and mysterious, but because I was never properly educated on what my own condition is. I'm realising that at 32 years of age, I don't understand the first thing about myself. And that maybe that's not the universal experience for autists that I thought it was.

Parents
  • For me, the central and most salient aspect of autism is that it makes life much more difficult for me than it seems to be for most people.

    Before my very late diagnosis (and the self-realisation that preceded it) I thought that people in general had similar problems to me, but they were just stronger and coped with them better. I now realise that no, my problems were not even imaginable by most people.

Reply
  • For me, the central and most salient aspect of autism is that it makes life much more difficult for me than it seems to be for most people.

    Before my very late diagnosis (and the self-realisation that preceded it) I thought that people in general had similar problems to me, but they were just stronger and coped with them better. I now realise that no, my problems were not even imaginable by most people.

Children
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