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Opinions on the levels of ASD?

appiejoolover

Hello, I was wondering about the different levels of autism and what autistic people think about them. I’ve noticed there’s a bit of a split in the community but there’s a majority of people who think the levels are confusing and often inaccurate. However some people find them useful for accessing support. I personally feel like it’s a fault within other people (not necessarily specific individuals but society) that autistic people need a diagnosis of level 2 or 3 asd to access the support they need. All autistic people deserve and should be able to access the support they need, but the levels can determine/aid with that, and level 1 autistics can find it harder to access support if their autism is seen as “milder”. What are your thoughts? 

Parents

  • I wasn't given a level when I was diagnosed, I was told that I'd lived in the world for 50 years and got on OK, so I could carry on doing so. When I did ask for help there was none to be found, the austic adults group only seemed interested in making sure you had the right benefits and anything else you were just shoved towards another agency, often a totally inappropriate one.

  • in reply to TheCatWoman

    there really needs to be something done about this, just because you've gotten through 50 years of life undiagnosed doesn't mean you don't require help. an autism diagnosis is often a big revelation and life and can make you notice what you've been dealing with, and that you can get help, you should be able to access proper help. we definitely need a lot less stigma for late diagnosed adults

  • in reply to appiejoolover

    Agree with this. I was diagnosed at 52 and got zero help, but everyone seems to have missed the fact that I survived - rather miserably - not thrived.

  • in reply to Stuart333

    I would like to have been offered something, even if I said no to most of it, I would have liked and would still like help and support with things that make my brain glaze over at the very mention of them, like filling in forms., Maybe I've spent to long filling in forms from the DWP to feel that I'm not being asked trick question's designed to make you fail.

    I would like help with tech and many of the other things that have come along in the course of my life that I've had no training with or any idea how to use, if they're right for me or what? I'm fed up of being told 'it's intuitive', it's not to me and I don't believe it's anything to do with autism ether, I think there's an assumption that everybody has had all this tech since it first came out and have updated through every model since and have in a sense grown with the tech.

    I would like help with things that really scare me, like going to the dentist, I go to pieces, have a melt down, hit people, try and hide etc. I don't want to be shown the instruments of my torture as a way of trying to familiarise myself with whats about to happen, nor do I want to be told off or de-listed because they can't cope with my allergies

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  • in reply to Stuart333

    I would like to have been offered something, even if I said no to most of it, I would have liked and would still like help and support with things that make my brain glaze over at the very mention of them, like filling in forms., Maybe I've spent to long filling in forms from the DWP to feel that I'm not being asked trick question's designed to make you fail.

    I would like help with tech and many of the other things that have come along in the course of my life that I've had no training with or any idea how to use, if they're right for me or what? I'm fed up of being told 'it's intuitive', it's not to me and I don't believe it's anything to do with autism ether, I think there's an assumption that everybody has had all this tech since it first came out and have updated through every model since and have in a sense grown with the tech.

    I would like help with things that really scare me, like going to the dentist, I go to pieces, have a melt down, hit people, try and hide etc. I don't want to be shown the instruments of my torture as a way of trying to familiarise myself with whats about to happen, nor do I want to be told off or de-listed because they can't cope with my allergies

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