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Opinions on the levels of ASD?

appiejoolover

Hello, I was wondering about the different levels of autism and what autistic people think about them. I’ve noticed there’s a bit of a split in the community but there’s a majority of people who think the levels are confusing and often inaccurate. However some people find them useful for accessing support. I personally feel like it’s a fault within other people (not necessarily specific individuals but society) that autistic people need a diagnosis of level 2 or 3 asd to access the support they need. All autistic people deserve and should be able to access the support they need, but the levels can determine/aid with that, and level 1 autistics can find it harder to access support if their autism is seen as “milder”. What are your thoughts? 

Parents

  • I wasn't given a level when I was diagnosed, I was told that I'd lived in the world for 50 years and got on OK, so I could carry on doing so. When I did ask for help there was none to be found, the austic adults group only seemed interested in making sure you had the right benefits and anything else you were just shoved towards another agency, often a totally inappropriate one.

  • in reply to TheCatWoman

    there really needs to be something done about this, just because you've gotten through 50 years of life undiagnosed doesn't mean you don't require help. an autism diagnosis is often a big revelation and life and can make you notice what you've been dealing with, and that you can get help, you should be able to access proper help. we definitely need a lot less stigma for late diagnosed adults

  • in reply to appiejoolover

    Totally agree.  And besides, most people who've got through 50 years of life undiagnosed wouldn't have jumped through the hoops to get a diagnosis unless they've been struggling in some way,  So it's pretty diminishing to be told you've "got on OK"

  • in reply to Stuart333

    I just asked to be refered, I'm lucky that I have good relationships with my GP's, I said I was struggling mentally, I suspected I might have autism and whether or not I had, a psychologist might have tools in their toolbox they could teach me. I rarely go to the doctors without some idea of what I want from them and I do reherse what I'm going to tell them. I have surprised a couple of doctors who've made assumptions about me, like about how good my diet is and that I have a brisk walk for between 30 mins and over an hour a day, that I don't believe everything I read online and that if I couldn't use it as a source in an academic essay I pretty much ignore it.

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  • in reply to Stuart333

    I just asked to be refered, I'm lucky that I have good relationships with my GP's, I said I was struggling mentally, I suspected I might have autism and whether or not I had, a psychologist might have tools in their toolbox they could teach me. I rarely go to the doctors without some idea of what I want from them and I do reherse what I'm going to tell them. I have surprised a couple of doctors who've made assumptions about me, like about how good my diet is and that I have a brisk walk for between 30 mins and over an hour a day, that I don't believe everything I read online and that if I couldn't use it as a source in an academic essay I pretty much ignore it.

Children
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