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Opinions on the levels of ASD?

appiejoolover

Hello, I was wondering about the different levels of autism and what autistic people think about them. I’ve noticed there’s a bit of a split in the community but there’s a majority of people who think the levels are confusing and often inaccurate. However some people find them useful for accessing support. I personally feel like it’s a fault within other people (not necessarily specific individuals but society) that autistic people need a diagnosis of level 2 or 3 asd to access the support they need. All autistic people deserve and should be able to access the support they need, but the levels can determine/aid with that, and level 1 autistics can find it harder to access support if their autism is seen as “milder”. What are your thoughts? 

Parents

  • I think it's difficult because there are definitely people that have more support needs than others and how else do you evidence this? But I don't think it's as simple as dividing people into levels. What one person needs support with is very different to another. I work and I live on my own. I'm aware there are many people with autism that this would never be a reality for. But I really struggle with my metal health which I think is very common for those who are classed as level 1 and the appropriate support for this just does not seem to be accessible. I also really struggle socially but again any social support is set up for those with "greater" needs and I can also really struggle to keep on top of things round the house and as I live on my own have zero support with this. But again as I work and do live on my own I therefore do not fit the criteria for any help. I wish they'd change the systems to case by case. I wouldn't need the amount of money something like PIP gives. But somebody to pop in once a week and help me keep on top of things would make a massive difference to my life. Unfortunately, I don't have a high wage job and am paying all the bills by myself so I just don't have the money to pay for help like that myself.

  • in reply to Expecto_Patronum
    Expecto_Patronum said:
    I think it's difficult because there are definitely people that have more support needs than others and how else do you evidence this? But I don't think it's as simple as dividing people into levels. What one person needs support with is very different to another

    I definitely agree with everything you have said. I feel like the struggles of being diagnosed as level 1 come mainly from the fact that it's sometimes seen as "not requiring support at all", when its really just lower than others. High maskers tend to fall under level 1, and like you said, mental health is a big struggle for high maskers.

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