Hello everyone,
I'm writing to you today with an update that I hope resonates with many of you. As some of you may remember from my previous posts (and if you're new, please do check out my story of diagnosis and the Wales Autism Bill 2019 here: community.autism.org.uk/.../hello-i-m-spencer-24-and-from-wales-this-is-the-story-of-my-diagnosis-employment-dispute-and-planning-my-next-steps), I've been formally diagnosed with autism since 2018. This diagnosis, while providing much-needed clarity, has also opened my eyes to the significant challenges many autistic people face in the UK.
Recently, I had the privilege of submitting testimony to the House of Lords Autism Act 2009 Select Committee as part of their call for evidence for a UK-wide inquiry. This was a truly significant opportunity for me to share my views and concerns, particularly in light of some deeply distressing experiences with the Department for Work and Pensions (DWP). These experiences, coupled with the profound challenges I've faced in day-to-day life and even the recent bereavement of my father over Christmas, have solidified my resolve to influence policies for the good and ensure a better future for the next generation of autistic people across the UK.
While I understand that health is a devolved issue in Wales, debated under the remit of the Welsh Parliament, I strongly believe the House of Lords can play a vital role in addressing issues that fall under the purview of the UK Parliament. My submission highlighted how the Autism Act, the Government’s autism strategy, and the statutory guidance are (or aren't) working effectively, drawing on my personal experiences to make specific, practical recommendations.
I elaborated on my reasons for engaging with this inquiry, driven by a deep desire to prevent others from enduring similar difficulties to what I've faced, particularly with the DWP. The systemic issues I encountered underscored the urgent need for a more understanding, adaptable, and genuinely supportive system for autistic individuals. This isn't just about my experiences; it's about making a tangible difference for every autistic person in the UK.
My testimony also touched upon the campaigns I've initiated from home, such as the Wales Autism Bill 2019. While this is a Welsh initiative, it speaks to the broader need for robust and effective legislative frameworks to support autistic people nationwide. I also felt it was important to convey the personal impact of my father's passing over Christmas and the ongoing challenges of daily life, as these are realities for many autistic individuals and often overlooked in policy discussions.
The Committee is seeking evidence on crucial questions, and I made sure to contribute to as many as possible, offering my insights on:
- Improving public understanding and acceptance of autistic people.
- Enhancing assessment, diagnosis, and post-diagnostic support.
- Improving identification and support for autistic people, including those without a diagnosis.
- Improving access to healthcare.
- Strengthening community support.
- Improving access to education.
- Enhancing support for autistic people to find and stay in work.
- Improving support for autistic people in contact with the criminal and youth justice systems.
Now, I'd like to open this up to our wonderful community here. Has anyone else had success with contacting their local political representatives to advocate for autistic rights and support? Have you been involved in any campaigning efforts, either locally or nationally? And crucially, has anyone else provided insight or evidence to the House of Lords Autism Act 2009 Select Committee or other similar inquiries? I'd love to hear your experiences, successes, and challenges, as your collective wisdom is invaluable.
Let's continue this vital conversation and work together to influence positive change for all autistic people in the UK.
Best wishes,
SpencerOfWhales
