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Late assessment - ADIR without an informant who knew me as a child

NAS95894

Hi,  I've got my assessment through right to choose this week, aged 56.  It's going to be ADOS then ADIR but the only person around who knew me as a kid is my Mum who is nearly 80 and highly unreliable.  I'm taking my husband - but wondered if anyone has had a similar experience of ADIR and know how that's likely to work and whether there's any extra prep I should be doing?  (I've not really seen any discussion of ADIR, let alone for an late assessment like this)

I guess I'm just fretting a bit. The agency is fine with me bringing my husband who I've known for 18 years.  Thing is, we didn't meet until I was 37 and  he's not seen what I'm like without him - and with him I'm happier and less bothered with my social ineptitude than I was (he himself is ASD) - so I'm a wee bit worried that it will give a misleading view of how life, as a whole, has been for me. 

Parents

  • My husband did mine for me as he knew me back from when I was a younger teenager so it was reliable.     They ask so many questions of the 'witness' you choose and so likely to be accurate if the person you choose is willing and wants to help you.  You have been living together all this time and the interviewer doesn't just ask childhood questions, they ask alot of minute details about what it's like living with you to get a good idea of your struggles.  

    Please try not to worry, it will go fine, best of luck :)

  • in reply to dopamineplz

    I find it differs so much, when I filled in the ADIR forms,  I mentioned that my wife has known me for over 35 years, the reply was that she wouldn’t be suitable as it must be someone from my developmental years. I just despair, as Catwoman has said, most of us struggle to maintain any sort of friendship, I don’t have any life long friendships.

  • in reply to Roy

    Hi Roy, yes I think possibly they might have said your wife wasn't suitable because you weren't under 18 when she first knew you ???  If she had known you back then, then  it's a shame they wouldn't let her do it for you and I have no idea why they wouldn't let her!   

    As I said previously, they don't just ask childhood questions ,there's so much more to it and they are very thorough.

    Additionally, if the person having the autistic assessment has excellent detailed childhood recall it goes a long way .  Sometimes people also have a medical history littered with 'autism bingo', where several different diagnoses were given that don't make sense when added up....ie. they add up to autism when taken into account WITH the person's history, traits, behaviours and needs. 

    As with OP try not to worry, it will all go well for you , take care :)

  • in reply to dopamineplz

    I had tourette diagnosis. My therapist was amazed and asked me few times if I imagined it myself and how it's possible that someone diagnosed me with tourette. Then I also had depression. Yeah very popular diagnosis and also misdiagnosis. Something us wrong? You're sad? Dang! Depression- and meds that never helped me 

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  • in reply to dopamineplz

    I had tourette diagnosis. My therapist was amazed and asked me few times if I imagined it myself and how it's possible that someone diagnosed me with tourette. Then I also had depression. Yeah very popular diagnosis and also misdiagnosis. Something us wrong? You're sad? Dang! Depression- and meds that never helped me 

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