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Late assessment - ADIR without an informant who knew me as a child

NAS95894

Hi,  I've got my assessment through right to choose this week, aged 56.  It's going to be ADOS then ADIR but the only person around who knew me as a kid is my Mum who is nearly 80 and highly unreliable.  I'm taking my husband - but wondered if anyone has had a similar experience of ADIR and know how that's likely to work and whether there's any extra prep I should be doing?  (I've not really seen any discussion of ADIR, let alone for an late assessment like this)

I guess I'm just fretting a bit. The agency is fine with me bringing my husband who I've known for 18 years.  Thing is, we didn't meet until I was 37 and  he's not seen what I'm like without him - and with him I'm happier and less bothered with my social ineptitude than I was (he himself is ASD) - so I'm a wee bit worried that it will give a misleading view of how life, as a whole, has been for me. 

Parents

  • I used my dad who is in 80s to be honest his memory wasn;t that great and he did an awful lot of working away from home, so my mum (who I'm thinking is possibly autistic - but not diagnosed) mainly brought my sister and I up, during the week.  Everything for my dad is "no problem".  The one good thing is my dad had kept most of my school reports mainly secondary school (early 1980s) - and they were very helpful.

    So understand where you are coming from - all the best too

  • in reply to Jalapeno

    My school reports say absolutely nothing about my social development, or other problems. Just grades in school subjects and that’s it. In my country it was unusual to write anything else especially if the only issue was that child was too shy and compliant. Bullies were never taken seriously. I’m wondering if these reports would help anything. My mom is deliberately withholding my medical records from my early childhood and also some of pictures i drew so I have no evidence and of course she does not support me in getting diagnosis, because I was too creative and intelligent, and autistic children are those, who only rock whole day and make certain sounds. Yes it’s true but not only. 

  • in reply to Alien0n3arth

    I have found all of my school reports in my mothers attic, they occasionally mention I was quiet but nothing stands out. My grades were normal yet in primary school I was put into remedial lessons, no mention was made of this. I know my parents were never made aware of this. I told my mother I think I may be autistic about 4 years ago, her answer was that autistic people don’t talk and stare at walls all day. 

    My early medical records were hand written. These would show I was hospitalised when young. I shutdown so deeply that I stopped drinking, this was after a trip to the dentist. I was in hospital for quite a while. I don’t know if these records still exist.

  • in reply to Alien0n3arth

    My parents say things like this and then in the next breath state my mother is autistic and I'm not.  I'm the one diagnosed and they don't believe it!  My boomer parents are unhinged for many reasons :(

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