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Late assessment - ADIR without an informant who knew me as a child

NAS95894

Hi,  I've got my assessment through right to choose this week, aged 56.  It's going to be ADOS then ADIR but the only person around who knew me as a kid is my Mum who is nearly 80 and highly unreliable.  I'm taking my husband - but wondered if anyone has had a similar experience of ADIR and know how that's likely to work and whether there's any extra prep I should be doing?  (I've not really seen any discussion of ADIR, let alone for an late assessment like this)

I guess I'm just fretting a bit. The agency is fine with me bringing my husband who I've known for 18 years.  Thing is, we didn't meet until I was 37 and  he's not seen what I'm like without him - and with him I'm happier and less bothered with my social ineptitude than I was (he himself is ASD) - so I'm a wee bit worried that it will give a misleading view of how life, as a whole, has been for me. 

Parents

  • I had a similar situation. My mum had to fill some forms in but she told me that she didn’t really have anything to say other than that I was ‘shy.’ But that was enough alongside the anecdotal evidence I had of childhood. Just from reading here it seems common that many of us have an undiagnosed autistic parent/s who don’t recognise the signs as they are similar and also they have a really outdated idea about what autism looks like. I don’t think there’s lots of preparation to do ( I feel a fraud saying that as I always prepare every conversation!) but just go with honesty and an open mind about the outcome. Wishing you luck! 

  • in reply to Merida

    Yes, the undiagnosed parents. My mom says that I'm exactly like her and there is nothing wrong with me. I'm just a bit weird and funny. I have problems understanding jokes sarcasm etc but I learned somehow to recognise emotions. Not always correct though. This is the biggest difference between me and my mom. 

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  • in reply to Merida

    Yes, the undiagnosed parents. My mom says that I'm exactly like her and there is nothing wrong with me. I'm just a bit weird and funny. I have problems understanding jokes sarcasm etc but I learned somehow to recognise emotions. Not always correct though. This is the biggest difference between me and my mom. 

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