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Late assessment - ADIR without an informant who knew me as a child

NAS95894

Hi,  I've got my assessment through right to choose this week, aged 56.  It's going to be ADOS then ADIR but the only person around who knew me as a kid is my Mum who is nearly 80 and highly unreliable.  I'm taking my husband - but wondered if anyone has had a similar experience of ADIR and know how that's likely to work and whether there's any extra prep I should be doing?  (I've not really seen any discussion of ADIR, let alone for an late assessment like this)

I guess I'm just fretting a bit. The agency is fine with me bringing my husband who I've known for 18 years.  Thing is, we didn't meet until I was 37 and  he's not seen what I'm like without him - and with him I'm happier and less bothered with my social ineptitude than I was (he himself is ASD) - so I'm a wee bit worried that it will give a misleading view of how life, as a whole, has been for me. 

Parents

  • Hi and welcome to the community.

    In addition to sharing my own memories and extracts from some of my school reports with my assessors, something that helped me enormously in preparing for that aspect of my assessment (covering my early developmental period and childhood) was getting a copy of my full medical records from my GP - including photocopies of my archived paper records.

    This helped in two ways. Firstly, it prompted me to remember various relevant things that I'd forgotten (my memory is generally very poor, especially going so far back). Secondly, it provided solid evidence from various stages of my childhood. For example, there were notes about my sensory sensitivities having proved problematic for doctors when they were trying to carry out physical examinations.

    Given the timing of your assessment, it might be a little late to request copies of your full records - not least because they might first need to retrieve them from off-site archive storage (as they did with mine).

    Rather than waiting for them to be copied, you could perhaps instead ask to inspect them. Based on the other option offered to me, this would likely need to take place at the GP practice, and with someone from their team supervising you throughout.

Reply

  • Hi and welcome to the community.

    In addition to sharing my own memories and extracts from some of my school reports with my assessors, something that helped me enormously in preparing for that aspect of my assessment (covering my early developmental period and childhood) was getting a copy of my full medical records from my GP - including photocopies of my archived paper records.

    This helped in two ways. Firstly, it prompted me to remember various relevant things that I'd forgotten (my memory is generally very poor, especially going so far back). Secondly, it provided solid evidence from various stages of my childhood. For example, there were notes about my sensory sensitivities having proved problematic for doctors when they were trying to carry out physical examinations.

    Given the timing of your assessment, it might be a little late to request copies of your full records - not least because they might first need to retrieve them from off-site archive storage (as they did with mine).

    Rather than waiting for them to be copied, you could perhaps instead ask to inspect them. Based on the other option offered to me, this would likely need to take place at the GP practice, and with someone from their team supervising you throughout.

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