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Late assessment - ADIR without an informant who knew me as a child

NAS95894

Hi,  I've got my assessment through right to choose this week, aged 56.  It's going to be ADOS then ADIR but the only person around who knew me as a kid is my Mum who is nearly 80 and highly unreliable.  I'm taking my husband - but wondered if anyone has had a similar experience of ADIR and know how that's likely to work and whether there's any extra prep I should be doing?  (I've not really seen any discussion of ADIR, let alone for an late assessment like this)

I guess I'm just fretting a bit. The agency is fine with me bringing my husband who I've known for 18 years.  Thing is, we didn't meet until I was 37 and  he's not seen what I'm like without him - and with him I'm happier and less bothered with my social ineptitude than I was (he himself is ASD) - so I'm a wee bit worried that it will give a misleading view of how life, as a whole, has been for me. 

Parents

  • Hi, I’ve got my assessment this week, I’m 57 and only have my mother left  who knew me as a child, she is nearly 80 and what I would class  as a hostile witness. My wife is going to accompany me, she has known me since I was about 20, I do get comments that I used to like certain things, she thinks I’ve somehow changed.

    My assessment is an NHS one, I’ve informed them that I don’t have an informant, the reply was that it will be conducted using ADOS and a general discussion about my childhood. To be honest it feels like going to court and being cross examined. If you have any school reports, they can be used as evidence. Good luck and I hope you get the outcome you hope for.

Reply

  • Hi, I’ve got my assessment this week, I’m 57 and only have my mother left  who knew me as a child, she is nearly 80 and what I would class  as a hostile witness. My wife is going to accompany me, she has known me since I was about 20, I do get comments that I used to like certain things, she thinks I’ve somehow changed.

    My assessment is an NHS one, I’ve informed them that I don’t have an informant, the reply was that it will be conducted using ADOS and a general discussion about my childhood. To be honest it feels like going to court and being cross examined. If you have any school reports, they can be used as evidence. Good luck and I hope you get the outcome you hope for.

Children
  • in reply to Roy

    This must be a huge issue for lots of people, my Mum's still alive, but she's never had a great memory and I wonder if she's ASC too. Why would anyone keep school reports from 40 or 50 years ago, who has the space?

    I don't have anyone else who's known me for any length of time, I guess I was lucky I was never asked for any of this stuff, it all seems to have changed a lot in the last 13 years since I was diagnosed, I don't remember being asked to fill in any forms or anything, just a few appointment with a psychologist.

    Like so much else around ASC, it all feels as though it's set up for the young and us latelings are 'out of context problems' the systems don't know how to cope with