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Hello, I’m new

GKF

Hi,

I’m new here.

i have recently been put on the waiting list for an NHS diagnosis but been told that there’s a waiting time of over 4 and a half years.

Does anyone have any advice for what I can do or any help I can get while I wait?

I am struggling with be able to get any help when it comes to education as I have recently started a degree with the open uni and as I don’t have ‘proof’ to give them, I can’t qualify for any additional help.

I am struggling mentally with all of this and I don’t know where else to turn for help

Thanks

G

Parents

  • Well I had a recommendation but having read your comments about your GP surgery it may not be applicable. You're going to get them anyway. 

    First of all, if you're not super rural and there is an option to move to a new GP, I'd recommend considering it.

    Secondly, your GP should be able to write you a letter explaining your difficulties and that you are awaiting diagnosis in a manner suitable for DSA or university accommodations. I'm aware that your current one won't. 

    Other options worth looking into are:

    Look into your area's talking therapies, especially as there are some forms of self referral available in Wales that don't have to go through your GP. Might not necessarily be useful, but it is useful to get a record down about seeking help, and they may be able to suggest some techniques to help you with day to day difficulties, but they may also refuse to see you based on awaiting autism diagnosis. But especially if you're struggling, getting some counselling can be helpful even when it's not specialised.

    As the waiting list is so long, some areas have specific pathways put in place for people on waiting lists needing support (I got given a social prescriber who was a specialist in autism) so it may be worth asking the provider you've been referred to if they have any recommendations. 

    Also ask open uni what resources they have anyway. There may be peer support groups, if online, or printed resources with generic advice they can give you.

    Also if you share any specific details about issues you're having e.g. lectures or assignment structure, we can share ideas?

    Hope any of that was helpful.

Reply

  • Well I had a recommendation but having read your comments about your GP surgery it may not be applicable. You're going to get them anyway. 

    First of all, if you're not super rural and there is an option to move to a new GP, I'd recommend considering it.

    Secondly, your GP should be able to write you a letter explaining your difficulties and that you are awaiting diagnosis in a manner suitable for DSA or university accommodations. I'm aware that your current one won't. 

    Other options worth looking into are:

    Look into your area's talking therapies, especially as there are some forms of self referral available in Wales that don't have to go through your GP. Might not necessarily be useful, but it is useful to get a record down about seeking help, and they may be able to suggest some techniques to help you with day to day difficulties, but they may also refuse to see you based on awaiting autism diagnosis. But especially if you're struggling, getting some counselling can be helpful even when it's not specialised.

    As the waiting list is so long, some areas have specific pathways put in place for people on waiting lists needing support (I got given a social prescriber who was a specialist in autism) so it may be worth asking the provider you've been referred to if they have any recommendations. 

    Also ask open uni what resources they have anyway. There may be peer support groups, if online, or printed resources with generic advice they can give you.

    Also if you share any specific details about issues you're having e.g. lectures or assignment structure, we can share ideas?

    Hope any of that was helpful.

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