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Late diagnosis regression?

Derrick

I am a 54 year old male who has been diagnosed in the past year.

I have struggled silently all my life with the feeling of being an alien on this planet.

I look like you, I sound like you, but I am using all of my energy trying to be like you.

Since I got my diagnosis I have gone through a lot of emotions, such as being angry at myself for leaving it so long to ask for help, and angry at the education system for not helping a child who was clearly needing help all those years ago.

When I received the diagnosis of autism I was instantly relieved and felt a huge pressure lifted from my shoulders, but that has now changed to becoming more socially isolated and anxious.

I have heard of "post diagnosis regression" and was wondering if any of the community had heard of it or suffered from it?

Parents

  • I have just read your post and although I had never heard of the post diagnosis regression I have definitely experienced it in a big way it feels like my brain is all clouded 

    I feel so angry about the whole process let down by the schools and it just feels like my brain decided to give up since I was told that I have autism 

    Is there any advise anyone has to pass over on how to deal with this ??? 

  • in reply to Adie_1973.

    It's going to take time. The thing that's helped me come to terms with it had been talking to others like me. Listening to audiobooks, reading personal accounts, following autism/ ADHD accounts on socials. It can help us to figure things out, but it will take time, so try to be patient if you're able to. Keep talking, listening and being mindful of thoughts and feelings. It'll start to make a bit more sense.

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  • in reply to Adie_1973.

    It's going to take time. The thing that's helped me come to terms with it had been talking to others like me. Listening to audiobooks, reading personal accounts, following autism/ ADHD accounts on socials. It can help us to figure things out, but it will take time, so try to be patient if you're able to. Keep talking, listening and being mindful of thoughts and feelings. It'll start to make a bit more sense.

Children
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