• Replies 11 replies
  • Subscribers 86 subscribers
  • Views 1576 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Late diagnosis regression?

Derrick

I am a 54 year old male who has been diagnosed in the past year.

I have struggled silently all my life with the feeling of being an alien on this planet.

I look like you, I sound like you, but I am using all of my energy trying to be like you.

Since I got my diagnosis I have gone through a lot of emotions, such as being angry at myself for leaving it so long to ask for help, and angry at the education system for not helping a child who was clearly needing help all those years ago.

When I received the diagnosis of autism I was instantly relieved and felt a huge pressure lifted from my shoulders, but that has now changed to becoming more socially isolated and anxious.

I have heard of "post diagnosis regression" and was wondering if any of the community had heard of it or suffered from it?

Parents

  • I'm currently going through the diagnostic process for autism but I've had an idea that was autism level 1 for a few years, and self diagnosed as AuDHD for the last 3 years.

    Since 2022 (self-dx) I've noticed that I am less willing to tolerate noisy or busy spaces, I've changed how I work and I've also cut way back on trying to socialise. I was never one for going out much anyway and have said for years that I prefer a quiet space to talk rather than shout into someone's ear from 2cm away. Now I know why.

    I've noticed that my working memory seems to have deteriorated but I think that's due to burnout, and I get tired far more quickly, also burnout. At least now I know what it is and I'm less inclined to try and tolerate it.

    If the energy doesn't feel right then I tend to leave places very quickly these days. It means that I don't meet people for coffee and a chat anymore, but now that I've accepted it I don't miss it as much.

    Initially I got mad at people from my past who could've helped me out simply by saying something, but maybe they did and I didn't pick up on it (hinting doesn't work) and how you do you walk up to someone and say "I think you might be autistic." It could end very badly, especially if they have no idea. I've forgiven them for either not seeing it or not knowing how to tell me. Here is where I am now.

Reply

  • I'm currently going through the diagnostic process for autism but I've had an idea that was autism level 1 for a few years, and self diagnosed as AuDHD for the last 3 years.

    Since 2022 (self-dx) I've noticed that I am less willing to tolerate noisy or busy spaces, I've changed how I work and I've also cut way back on trying to socialise. I was never one for going out much anyway and have said for years that I prefer a quiet space to talk rather than shout into someone's ear from 2cm away. Now I know why.

    I've noticed that my working memory seems to have deteriorated but I think that's due to burnout, and I get tired far more quickly, also burnout. At least now I know what it is and I'm less inclined to try and tolerate it.

    If the energy doesn't feel right then I tend to leave places very quickly these days. It means that I don't meet people for coffee and a chat anymore, but now that I've accepted it I don't miss it as much.

    Initially I got mad at people from my past who could've helped me out simply by saying something, but maybe they did and I didn't pick up on it (hinting doesn't work) and how you do you walk up to someone and say "I think you might be autistic." It could end very badly, especially if they have no idea. I've forgiven them for either not seeing it or not knowing how to tell me. Here is where I am now.

Children
No Data