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Late diagnosis regression?

Derrick

I am a 54 year old male who has been diagnosed in the past year.

I have struggled silently all my life with the feeling of being an alien on this planet.

I look like you, I sound like you, but I am using all of my energy trying to be like you.

Since I got my diagnosis I have gone through a lot of emotions, such as being angry at myself for leaving it so long to ask for help, and angry at the education system for not helping a child who was clearly needing help all those years ago.

When I received the diagnosis of autism I was instantly relieved and felt a huge pressure lifted from my shoulders, but that has now changed to becoming more socially isolated and anxious.

I have heard of "post diagnosis regression" and was wondering if any of the community had heard of it or suffered from it?

Parents

  • It seems it is fairly normal.

    Once you become aware and you accept yourself, it's inevitable you'll want to be more true to yourself. You will also be more aware of how you feel and be less inclined to dismiss discomfort, plus perhaps you'll want to avoid certain things you used to put up with.

    The problem, of course, is the world has not changed and all the reasons you tried to fit in before still apply.

    I think the difference is that you can be more clever about it, using your energy where it makes most sense making your life easier elsewhere.

Reply

  • It seems it is fairly normal.

    Once you become aware and you accept yourself, it's inevitable you'll want to be more true to yourself. You will also be more aware of how you feel and be less inclined to dismiss discomfort, plus perhaps you'll want to avoid certain things you used to put up with.

    The problem, of course, is the world has not changed and all the reasons you tried to fit in before still apply.

    I think the difference is that you can be more clever about it, using your energy where it makes most sense making your life easier elsewhere.

Children