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ASD diagnosis rejected

Mia151515

Hi everyone,

Today I had my feedback from my ASD assessment and i've been told they're not diagnosing me and they think my symptoms are just down to anxiety. 

As you can imagine i'm extremely upset about this and been crying all day as I know deep down that I am autistic after doing nearly 2 years of research reading medical books, listening to podcasts and speaking with other autistic people. They told me to speak to my GP to possibly up my antidepressants and speak to them about anxiety (which i have already been doing for 9 years and they've got me nowhere). I can only imagine this is down to the assessment criteria being so outdated and not suited to late diagnosing autistic women. 

I am now looking at going down the private diagnostic route as I am not happy with my result from the NHS. 

I was just interested to see if anyone on here had any experiences with private ASD diagnosis' (either alone or following from a rejection of NHS diagnosis). Or if there were any recommendations, tips or advice to cheer me up as I dont have many other people to talk about this with so feeling pretty low Disappointed

Thanks in advance !!

Parents
  • Mia151515 said:
    Today I had my feedback from my ASD assessment and i've been told they're not diagnosing me

    It is worth realising that this does not mean you are not neurodiverse, just that you didn't reach the threshold of being autistic "enough" to qualify as disabled.

    This is essentially what the diagnosis is about - are you badly enough affected by enough autistic traits to meet the threshold as being disabled.

    While it is dissapointing to not have a black-or-white answer your research has clearly pointed out that you have a range of autistic traits so what you can do is work to lessen the impact these have on your life, thus improving your overall quality of life.

    Mia151515 said:
    I am now looking at going down the private diagnostic route as I am not happy with my result from the NHS.

    I would recommend speaking to your GP first to find if they will accept the diagnosis from the company you want to use as I have read of people on where who asked for it to be added to their medical records but it was rejected on the basis that the assessment company were not approved.

    Also be prepared to pay between £1k and £2k and still have a wait time of months as there is a lot of demand for this, even privately.

    If I were in your shoes I would take several of the online autism assessments and see if I was scoring above the threshold for a diagnosis otherwise there is a significant risk you could pay all that money privately and still not be given a positive diagnosis.

    So the tip for finding something positive would be to take control of your mental health, work on learing more about it, teaching yourself techniques to build resiliance, avoid the pitfalls and become more confident in your strenghts.

  • in reply to Iain

    Thank you! I have done a lot of online autism tests and ive scored very high on all of them, hence even getting this assessment in the first place. I think i will go for the private route as I am still very certain that I am autistic. I really appriciate your comments so thank you Slight smile

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  • in reply to Iain

    Thank you! I have done a lot of online autism tests and ive scored very high on all of them, hence even getting this assessment in the first place. I think i will go for the private route as I am still very certain that I am autistic. I really appriciate your comments so thank you Slight smile

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