Article in the Grauniad

OK…. it'snot the Grauniad, but that well know purveyor of typos and spillong mostwkes the Guardian 

and again the site wont let me post a link to the article….so here is the text. It is not behind a paywall but you do have to agree to pesky ads if you don’t want to pay to go add free. Or you have an adblocker like I do so to my thinking this is not a breach of copyright. Whilst I am saddened if the oberleutnants decide otherwise and delete it.. can we discuss the article instead if the behaviour of the mods.

The promise of diagnosis: how it can open a door to true self-understanding

Too often, a diagnosis is seen as the end of the story, rather than the beginning. But it has the potential to launch us on a curious and profound journey of discovery

There is a national conversation – or perhaps more a national talking at each other – taking place at the moment, about an “overdiagnosis” of mental health conditions. The health secretary, Wes Streeting, is concerned too many people are being “written off” in this way. I spend quite a lot of time thinking about this subject, alone, with colleagues, with patients as a therapist, and as a patient in therapy myself. I think our response is crucial for building not just a better life but a better society.

I think that diagnosis can be a vital part of mental health treatment. It is not something I do as a psychotherapist; I respect my psychiatrist colleagues who do it for their skill, knowledge, experience and compassion. When the system works, a diagnosis can bring relief, it can open the door to the best therapy and medication, and finding a name for your experience can feel containing and valuable.

But.

A diagnostic approach to oneself is not always helpful. I think we all have a tendency to use a diagnosis to close a door, rather than open it. We can often use a diagnosis – depression, say, or obsessive-compulsive disorder, or autism spectrum disorder, or anxiety – to stop any further thinking, to close down any search for meaning in our own experience as human beings, with our individual histories, relationships and pain. Closing the door to our minds like this can close off the possibility of building a better life.View image in fullscreen

Take, for example, a diagnosis of ADHD. Many people feel seen when they receive this diagnosis – it feels like an answer to a question they have been asking for much of their lives.

In my work with patients, I see its value not as an answer, but as the opening of a new question. ADHD is a description of a collection of symptoms; experience and research indicate that medication might help, that there might be some genetic and neurodevelopmental foundation to these difficulties. But it doesn’t have to end there. A person might gain an even more valuable understanding of themselves if they delve below that diagnosis and explore what unwanted feelings they are avoiding when they are late for appointments, what traumas or memories or thoughts they are moving away from when they cannot sit still, what unconscious dynamics they are repeating when they find it impossible to complete a task. These difficulties can – not always, but sometimes – be understood in therapy in a way that brings a different kind of meaning and a deeper sense of self-understanding. These feelings and beliefs can be made conscious and worked through; a capacity to tolerate difficult emotions can grow. Or you could shut that all down with, “That’s just my ADHD.”

It was once my privilege to interview Gianna Williams, a child and adult psychoanalyst, and she drew my attention to a powerful dimension of the word “understand”: understanding as standing under something and looking up, trying to explore phenomena from a position of not knowing, and being curious about what you might find. This is a very different approach from diagnosing. Rather than knowing something and applying a label to an experience from above, you are developing a capacity to tolerate not knowing, and trying to explore a feeling and put it into words.

I think we all have a tendency to use a diagnosis to close a door, rather than open it

This kind of understanding is what I have been offered by my psychoanalyst, and it’s the kind of understanding I seek to offer my patients as their psychodynamic psychotherapist (these forms of therapy are rooted in the same theories). But it takes time. It can only happen in a robust, sustained therapeutic relationship, in which difficult feelings can be faced and valued, the unconscious can begin to be made conscious, ruptures can be tolerated and repaired, and a person can grow and develop.

Sometimes, remarkable recovery can take place with this kind of therapy. Patients who had been “written off”, to use the health secretary’s words, who had indeed written themselves off, can find resources they didn’t know they had, and perhaps didn’t previously have, to understand where their difficulties come from, turn towards themselves and attend to these difficulties in a way that is not punitive, but helpful. They can realise that the unconscious dynamics that have haunted them since their earliest days are now no longer required, and can be laid to rest. It is not unusual, for example, to see patients encounter within themselves a desire and capacity to seek, find and sustain work that had previously felt impossible to them.

Regrettably, I have not seen any plans from the health secretary to offer funding for sustained psychoanalytic psychotherapy for patients who want it. There is plenty of evidence to show that this kind of therapy can help patients with entrenched difficulties including so-called treatment resistant depression. But I suspect that this treatment doesn’t fit in with Streeting’s own “diagnosis” of the problem. He has his eyes on the cost of benefits, and not on the savings that might come from investing in well-trained therapists who can help patients find their own way forward in their lives. It’s a travesty for us as a society and as individuals, because talking about reducing a person’s benefits while at the same time denying them the treatment they might use to build a better life is, to my mind, a sure way to perpetuate the kind of writing off he is seeking to avoid.

Moya Sarner is an NHS psychotherapist and the author of When I Grow Up – Conversations With Adults in Search of Adulthood

  • I think a diagnosis should be a jumping off point, you can start there and do research on it, find out what things help and what don't, we can look at our lives through an autustic lens rather than an NT one. A diagnosis can give us a reason for the way we are, not an excuse for poor behaviour.

  • Certainly my life has been a motorway pileup followed by a train crash and a plain wreck with the odd shipwreck in between. At 66 I don't hold anyone "responsible" fir all my difficulties because when it mattered all those year's ago, the entire world was not aware of Autism. But yes my life would have been very different. 
    All I can hope for the next generation will have a better time. 

  • After realising that I was almost certainly autistic I actively sought a diagnosis (and paid for it) as a form of validation. Being diagnosed was almost entirely positive for me. It gave me a definite reason for my strange sensory difficulties, my exhaustion from over-socialising, my anxiety, feelings of never quite fitting in etc. etc. It allowed me to forgive myself for some past failings and allowed me to not feel guilty about bailing out of situations that felt overwhelming for me. I thought that people in general had similar problems to me, but were just better at coping with them, were stronger than me. In fact my problems just did not exist for the vast majority.

  • Perhaps a diagnosis closes the door for some people, for others, the door opens. Many autistic people prefer the identity of “I am autistic” rather than “I have autism”, because it is part of our being and identity, but it doesn’t make us immune to all the personality and temperament differences that occur in non autistic people.

    Some people might play the autism card for whatever reason, others might seize their newly affirmed knowledge to navigate life, in at times extremely challenging circumstances. 

    Diagnosis came too late for me in my 60s, and often I think of how life could have been different, at school and employment,  if my needs had been recognised. At the same time, diagnosis has somewhat lifted the heavy blanket of shame that had been smothering me all my life and I think the positive impact of that is underestimated by some professionals. NHS funding is needed to offer support following diagnosis. As a person with treatment resistant depression I would jump at the chance to talk to a professional who might ‘get’ me. I wish something would inject my mood with an energy that could fire me up to enable productive functioning. 

    I think Labour’s plan to cut benefits without considering the impact of lack of follow up support for autistic people, is reflective of a government who seeks to appease voters on the right, and is reflective of their immoral values. Targeting the vulnerable rather than taxing those who can afford it is a cheap trick.

    I would be in a far worse position if I hadn’t received my diagnosis last year, so I am not going to think of myself as written off, it doesn’t help my mental health to use that choice of words. 

  • What do peeps think of what is being said that a diagnosis can be the opening to understanding ourselves and not a write off?

  • You’ve just posted links!