Autism/ADHD and PMS

I know this isn't a topic that everybody is comfortable with so apologies in advance for that. But it is something I am struggling with and I've read some things that say that PMS is more common with neurodivergency.

I have periods of low mood anyway but it absolutely plummets during my time of month and I just can't snap out of the feeling of total despair. I know that it only typically lasts a few days and will pass but it's really unbearable whilst it lasts.

I know the logical answer would be to go to the doctor but I don't think I'd like their solutions. I believe they'd either suggest antidepressants which I have tried and tested and not had a pleasant experience with. Or they'd suggest going on the pill but this idea makes me very uncomfortable. I'm wary of medication anyway because I've had bad experiences with side effects but something about a pill that impacts on your hormones worries me. I've also heard people say that it can increase your risk of certain cancers etc which makes me wary. I know sometimes these things are just scaremongering or a rare risk but I can't get past my anxiety of something happening.

Does anybody else have similar struggles? Has anyone found success in a solution? Or tried things that haven't worked?

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  • I really suffer in my cycle. My doctor was reluctant to formally classify it as PMDD vs PME (pre menstrual exacerbation, basically PMDD but other background issues exist cycle round so hard to definitively say PMDD).

    As others have said, we can't give medical advice here, but I can share my experience. I was put on the combined pill, and I found it was really helpful. I still have to have some periods or I get breakthrough bleeds, but I can effectively schedule them to low stress times when I can do really full on self care and the effects aren't as disruptive (e.g. I've scheduled this years around my exams). I also find that periods managed by the pill have less major emotional effects so for me this was super useful.

    As others have said below, your GP will be able to offer really useful information about what versions may work for you, it is sometimes trial and error, as it's unpredictable how different bodies react (for a different physical health condition I once had to try 5 different medications before we found one that worked but when we got there it was life changing) so that is something to be prepared for if that's something you wished to pursue. 

    Overall, I hope this helps you know that you're not alone in this problem, and that solutions can be found for different people.

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