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Autism and ageing - your experiences

JD-on-sea

Evening all

Being someone diagnosed in their early 40s I was wondering if older participants on this forum could share their experiences of getting older and any challenges you think we should be aware of? Obviously if you are autistic you don’t know what it’s like to be an ageing NT, but if there’s anything you think is unique to us as autists please share. Anything particular to your 50s, 60s or 70s? 

Parents

  • I've been told it could be a good idea to give some kind of letter to your GP to go in with your medical records of what you are and are not capable of. Should you get a head injury or dementia, its no good them asking you some of their common questions, if its something you've never been able to do, it would give a false idea of your capabilities.

    Other than that I can't say it's looking particularly good for us as we age, services seem to change when you get to 60 and you go from adult to geriatric which is a s weird as you going from child to adult at the other end of life. Service for older people like all the various incarnations of Age UK which are different outside of England seem totally ignorant of ASC and I don't just mean they're rude of anything, but it just dosen't register with them, they seem to have no idea that older people can be and are ASC, so they dont' cater for it.

    I dread ending up in a care home where they try and make me listen to Abba or something, I found it bad enough the first time round, or being made to go to musical theatre or something equally abhorent.

    I think this will be the next big challenge to ASC people and services such as NAS, we need to educate elderly care services about our needs.

  • in reply to TheCatWoman
    TheCatWoman said:
    I dread ending up in a care home where they try and make me listen to Abba or something,

    When my mother (who I believe was autistic+) was in a care home a carer asked her why she wouldn't go down to the lounge and mix with people. 

    My mother said 'because I don't like people'.

    That set the carer straight!

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