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Late diagnosed female with autism (39) shutting down

Jax

Hi,

I was diagnosed with autism a few weeks ago. I was angry - I grieved for the life I could have had , how things could have been different.

But now I am going through something else. I can barely form sentences, the cognitive effort of speaking to anyone is so great that a ten minute conversation makes me feel exhausted , everything is too loud , my body hurts all the time and I am struggling to see the point in anything.

I had a week off work and got nothing done I was intending to. I just stayed in bed and occasionally played animal crossing. Now I am back at work and yesterday I had to stop at 1:30 because I physically couldn't stay awake any longer. Back at my desk today (work from home) but everything is just a lot.

In the past when this has happened when I had other diagnoses I was considered to be in a depressive state. Now I don't even know if that is what this is anymore. I feel like i've lost the language to describe what's happening.

I don't really know what I am saying - has anyone experienced similar?

Parents

  • Thank you all - the resources, reassurance and kind words have really helped. I have felt really alone. 
    I will look into the resources and talk to my Dr.

    As an adult are there any resources available such as workshops / groups / etc outside of this forum that could be useful as I learn what this all looks like?

  • in reply to Jax
    Jax said:
    As an adult are there any resources available such as workshops / groups / etc outside of this forum that could be useful as I learn what this all looks like?

    Some suggestions:

    1. Check the NAS's Autism Services Directory, which does include groups among its listings. You'll need to specify what you're searching for (I suggest keeping it to "group", at least initially), and then enter your postcode and select a search distance / radius (0, 5, 10, 20, or 50 miles).

    2. Consider joining an online NAS branch - the linked page includes details of online NAS clubs focusing on books, arts and crafts, running, and LGBTQ+.

    3. Contact your nearest volunteer-led local NAS branch, to see whether they can offer support or make any recommendations for you, informed by their local knowledge. 

    4. Try searching on Facebook for autism groups in your area. 

    5. Finally, it's always worth trying Google (or other search engines). I'd suggest a search phrase like: autism support group and then also including the name of where you live - or the nearest sizeable towns, doing separate searches for each of them.

Reply
  • in reply to Jax
    Jax said:
    As an adult are there any resources available such as workshops / groups / etc outside of this forum that could be useful as I learn what this all looks like?

    Some suggestions:

    1. Check the NAS's Autism Services Directory, which does include groups among its listings. You'll need to specify what you're searching for (I suggest keeping it to "group", at least initially), and then enter your postcode and select a search distance / radius (0, 5, 10, 20, or 50 miles).

    2. Consider joining an online NAS branch - the linked page includes details of online NAS clubs focusing on books, arts and crafts, running, and LGBTQ+.

    3. Contact your nearest volunteer-led local NAS branch, to see whether they can offer support or make any recommendations for you, informed by their local knowledge. 

    4. Try searching on Facebook for autism groups in your area. 

    5. Finally, it's always worth trying Google (or other search engines). I'd suggest a search phrase like: autism support group and then also including the name of where you live - or the nearest sizeable towns, doing separate searches for each of them.

Children
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