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Late diagnosed female with autism (39) shutting down

Jax

Hi,

I was diagnosed with autism a few weeks ago. I was angry - I grieved for the life I could have had , how things could have been different.

But now I am going through something else. I can barely form sentences, the cognitive effort of speaking to anyone is so great that a ten minute conversation makes me feel exhausted , everything is too loud , my body hurts all the time and I am struggling to see the point in anything.

I had a week off work and got nothing done I was intending to. I just stayed in bed and occasionally played animal crossing. Now I am back at work and yesterday I had to stop at 1:30 because I physically couldn't stay awake any longer. Back at my desk today (work from home) but everything is just a lot.

In the past when this has happened when I had other diagnoses I was considered to be in a depressive state. Now I don't even know if that is what this is anymore. I feel like i've lost the language to describe what's happening.

I don't really know what I am saying - has anyone experienced similar?

Parents

  • I’m sorry you’re having such a tough time at the moment. It’s completely natural to feel like this post diagnosis I was also diagnosed later in life. From what you’re talking about you could be experiencing autistic burnout. There’s resources on the national autistic society regarding this and dealing with feelings post diagnosis that may be beneficial to read. I think these resources are under the advice and guidance section. Therapy could also be beneficial I know this has personally helped me. You can access this by going to your GP. Also, if you feel comfortable you could disclose your diagnosis at work and request reasonable adjustments to make work more accessible which might help. Also just sharing the info with work if you feel comfortable may help as they will be aware you’re struggling.

    Wishing you the best Blush

Reply

  • I’m sorry you’re having such a tough time at the moment. It’s completely natural to feel like this post diagnosis I was also diagnosed later in life. From what you’re talking about you could be experiencing autistic burnout. There’s resources on the national autistic society regarding this and dealing with feelings post diagnosis that may be beneficial to read. I think these resources are under the advice and guidance section. Therapy could also be beneficial I know this has personally helped me. You can access this by going to your GP. Also, if you feel comfortable you could disclose your diagnosis at work and request reasonable adjustments to make work more accessible which might help. Also just sharing the info with work if you feel comfortable may help as they will be aware you’re struggling.

    Wishing you the best Blush

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