Time rigidity & routine stress

Hi! I'm newly diagnosed (3 days ago!) so I'm doing loads of research to try to understand myself better and work out in what ways autism affects me and if others can relate. I've always struggled with other people choosing a time that we do things in the day, this is because I usually have a time that I want to suggest, but feel too awkward to suggest it, then they suggest it and it's not the 'right' time, so it messes up the plan I had already made in my head and often also worries me with things like food and how exhausted I'll be after seeing someone.

For example; 

My grandma had asked me to go to her house to discuss my autism diagnosis (she is supportive and interested in knowing more), so I said okay and that I'd go today. I'd rather not, but she values time spent together a lot. I woke up this morning at 7am and personally would have liked to of gone at 8 or 9, to get it out the way, but I decided in my head that 10am would be okay because then I could be home for lunch and before 12.. after 12 is the afternoon and that means half the day is gone, that's too late. She suggested 11am, a time I HATE but that NT's seem to love for social things. 11 stresses me out so much because I'll be hungry for lunch by 12, but i'll be expected to stay at hers until 1, so I'll end up coming home at 1/1:30, hungry, feeling unwell, tired from socialising and then have to somehow cope with the rest of my day. I said 'okay', because I'm too anxious to ask her if she can do earlier. I feel angry that she suggested 11 and upset with how this affects the rest of my day.

I don't know if this is time rigidity, needing to be in control, routine, food preferences or all of the above, but does anyone else relate? I hate that I go through this cycle every time I have to see someone. I just want to get things out of the way early, so I can go home and follow my preferred schedule. 

  • Ironically, I was doing a jigsaw yesterday and missed my mealtime by an hour Rofl

  • Welcome!

    I totally get the meal times thing because I am the same. Also I have been advised to eat at fixed times due to stomach issues.

    In my older age and since diagnosis, I have started to do things like take my own food with me to family. Once they get over the 'weirdness' of it, they get used to it.

  • Hi! I'm newly diagnosed (3 days ago!) so I'm doing loads of research to try to understand myself better and work out in what ways autism affects me and if others can relate.

    Congratulations on your diagnosis and welcome to the community!

    If you haven't yet seen them, you might find these NAS resources helpful:

    NAS - What is autism (provides an overview of the various types of difficulties that can affect us, along with links to more information about each)

    NAS - After diagnosis - includes:

    • How you might feel after a diagnosis
    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) - which can include learning how to better cope with our difficulties - is often recommended after a diagnosis, as a follow up action for your GP to arrange. You might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, myself included:

    The Autistic Survival Guide to Therapy

  • thank you, I'll try the things that you've mentioned 

  • She suggested 11am, a time I HATE but that NT's seem to love for social things. 11 stresses me out so much because I'll be hungry for lunch by 12, but i'll be expected to stay at hers until 1,

    I find it helps to understand that your company is actually something your grandma wants, so by being there you are bringing her happiness even if it is at the cost of some discomfort to you. You are doing something nice for her - almost a gift of your time.

    While you are talking to her about your autism I would explain to her the specific trait you have for the timing of things and ask if you can decide times in future. Point out you love seeing her but being able to choose the time saves you a lot of anxiety. I'm sure she will agree to this.

    As for other situations with the rest of the world I would work on stopping creating plans in advance of agreeing a time slot - this way you can construct a plan around the constraints in place and work out how to make the most of it.

    This is easier said than done but if you have anyone providing therapy / counselling then they would be the best route to developing this sort of mental discipline.

    It does sound like you would benefit from being able to advocate more for yourself which is another task for their list - working on the thought processes and role playing the actual use of it are all practical ways to make your quality of life better.

    Good luck

  • Maybe if this happens again you could suggest to your Grandma that you both eat lunch together at her house, and you bring something towards the meal (perhaps 2 slices of cake?)

    Good luck with your journey of learning and educating others Blush

  • Thank you for responding and for the advice. I ended up taking a small slice of cake so that I knew I would have at least something. 

    I've been and gone, now home tired and didn't get to eat lunch and now it's too late so have to wait until dinner..but my grandma was very nice and understanding about my autism, I've only just told people. I'll have to try and advocate for myself more in future. 

  • Hi and welcome to the forum.

    I'm the same - I also like to eat my lunch around 12 and I can't cope if I'm hungry. I think it's partly not being able to change schedule and partly low blood sugar.

    I used to always try to fit in with what others wanted but now I try to negotiate or make an excuse not to see someone if I know it's going to stress me out. I also try to think of a compromise - so if for example I could only get an appointment for something (doctors, hairdressers etc) late morning, I'll take a snack bar in my bag so that I can eat that after the appointment and then go home and eat the rest of my lunch.

    As it's now 11.54 I expect you are already at your Grandma's house so it's too late to give you advice how to change it today, and I hope you coped ok. But as she is interested in learning more about autism, it's an opportunity for you to explain about how you find it extremely difficult to cope with doing things at a different time to your own schedule, and how it makes you feel tired and anxious. If she wants to be supportive she should be able to understand this.

    I hope you find this community a good source of information and support too.