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Not autistic diagnosis

notthatmuchautistic

Hello,

This morning I have my diagnosis from NHS. they told me that while I have autistic traits and they understand why I would pursuit an assessment, I didn't  make the criteria for a diagnosis, they mention specially my empathy and my facial expressions, that are normal.

I don't  know how to feel. I have a child with autism and our similarities was what made me search for an evaluation.

At the moment, I have some accommodations at my job that are in place under the premise that I am undergoing the process of autism diagnosis. Those adaptations have made my life much easier  and I don't  want to cry every day when I am going to my job (like before).

I am guessing  that once my job knows that I don't  have autism I am losing  that help and I don't  know what to do.

I don't  want to be the kind of person that take advantage  of the system and have benefits  that doesn't  need, but I do struggle and now I don't know what to do next.

I hope this post doesn't  offend people with autism, I know this forum  is for the autistic community and I am not sure if I should  post.

Parents

  • Sorry to hear about the outcome, that’s very frustrating. Please don’t feel you can’t use this forum. You’re absolutely welcome and this is a place for anyone who resonates with the community, diagnosed or not. 

    About the work accommodations, just because you didn’t get an autism diagnosis doesn’t mean you don’t need or deserve the support. Lots of workplaces offer adjustments based on struggles employees are having, not just their diagnoses. If the accommodations are helping you work better and avoid burnout, that’s something worth pointing out to your employer. They’re supposed to support you to do your job effectively, and it’s not “taking advantage” to ask for what you need.

    They would also be stepping on dodgy ground if they decide to take away any adjustments based purely on not having an autism diagnosis. You may still be considered protected under the equality act. If they chose to take away your adjustments and your mental health declines, they could be breaking the law. I am sure they will see the common sense that your adjustments are working for you and them, as it means you’re more productive. I don’t feel you have to tell them of your recent outcome anyway… but maybe if it does come up, you could say you are seeking a second opinion, which may be worth you asking your GP for if you feel that your assessment may have missed some things, or if you were highly masking during your assessment. 

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  • Sorry to hear about the outcome, that’s very frustrating. Please don’t feel you can’t use this forum. You’re absolutely welcome and this is a place for anyone who resonates with the community, diagnosed or not. 

    About the work accommodations, just because you didn’t get an autism diagnosis doesn’t mean you don’t need or deserve the support. Lots of workplaces offer adjustments based on struggles employees are having, not just their diagnoses. If the accommodations are helping you work better and avoid burnout, that’s something worth pointing out to your employer. They’re supposed to support you to do your job effectively, and it’s not “taking advantage” to ask for what you need.

    They would also be stepping on dodgy ground if they decide to take away any adjustments based purely on not having an autism diagnosis. You may still be considered protected under the equality act. If they chose to take away your adjustments and your mental health declines, they could be breaking the law. I am sure they will see the common sense that your adjustments are working for you and them, as it means you’re more productive. I don’t feel you have to tell them of your recent outcome anyway… but maybe if it does come up, you could say you are seeking a second opinion, which may be worth you asking your GP for if you feel that your assessment may have missed some things, or if you were highly masking during your assessment. 

Children
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