Newly Diagnosed, now what?

I am a 33yr old woman and have just received a level 1 autism diagnosis. It has shook me a bit more than I thought as although I was confident I had autism the emotional response I had to the confirmation was unexpected.

Now what do I do? I don't know what I'm supposed to do now or how to view my life. I don't really have friends and no parents to talk to. I don't want to unload too much on my husband and just want advice as to what I should do now. 

How much of what I think is me is truly me? And how much os the fake me I put on for the world and how do I distinguish the two? I just need some advice from others who have been diagnosed late in life and how you handled it and figured out who you were.

Thank you

Parents
  • Hi and welcome to the community!

    You're not alone in having reacted emotionally - I cried straight away when my autism was confirmed, and others here have felt similarly. :)

    During the period following a diagnosis, it can be common for us - especially as late-diagnosed adults - to experience some emotional dysregulation. Aside from relief and other positive emotions, this can include working through a phase where we experience (backward-focused) anger, frustration, grieving and more.

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How will I feel after receiving an autism diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    In terms of what to do next, my advice at this point (ie soon after your diagnosis) would be to try and give yourself some time and breathing space to process and absorb everything that you've been through, and let your feelings settle down.

    For me, as for many others here, my diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of ready-made solutions for my various difficulties.

    Therapy is often recommended after a diagnosis - perhaps along with other actions for your GP, detailed in your diagnosis report.

    You might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, myself included:

    The Autistic Survival Guide to Therapy

Reply
  • Hi and welcome to the community!

    You're not alone in having reacted emotionally - I cried straight away when my autism was confirmed, and others here have felt similarly. :)

    During the period following a diagnosis, it can be common for us - especially as late-diagnosed adults - to experience some emotional dysregulation. Aside from relief and other positive emotions, this can include working through a phase where we experience (backward-focused) anger, frustration, grieving and more.

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How will I feel after receiving an autism diagnosis

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    In terms of what to do next, my advice at this point (ie soon after your diagnosis) would be to try and give yourself some time and breathing space to process and absorb everything that you've been through, and let your feelings settle down.

    For me, as for many others here, my diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of ready-made solutions for my various difficulties.

    Therapy is often recommended after a diagnosis - perhaps along with other actions for your GP, detailed in your diagnosis report.

    You might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful, myself included:

    The Autistic Survival Guide to Therapy

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