Words typed online can be deceptive

#mentalillness #ActuallyAutistic Words typed online can be deceptive. Not in a telling lies kind of way, but in the picture they can paint of a person.Being online, with its heavy tilt towards verbal skills,plays to my strengths. That me is very different from the me that struggles with practical tasks IRL. The one that needs quite a lot of support to maintain an adequate level of independent living.

I don’t doubt there are others like me. The grown up version of children who nowadays would be called 2e. The mental health profession often isn’t friendly and supportive to us. It can be quite condemning and hostile.Its interactions with us are predominantly verbal, and our strengths are centre stage. When we then struggle when non-verbal/practical skills are needed, it’s often seen as contrariness, passive aggressiveness etc .Or any other term that might be used to describe a person as having a ‘character defect’. It’s one of psychiatry’s and also psychology’s weakest areas. It often fails people like us. It, without doubt, is an area where they need to up their game.

Parents
  • I agree with you and I was actually going to start a similar thread. I've never seen a psychiatrist so I don't know what they're like and I've seen a couple of psychologists who were quite good.

    Like you I'm good verbally, but some practicle skills I lack and just don't seem to be able to get my head around them, or not in the way they seem to want me too. There seem to be some tropes and stereotypes about people with ASC and/or learning difficulties, there are also plenty around class too. In the past I've been told I must be good at maths because I'm dyslexic and all dyslexics are good at maths, a way of compensating for being poor with words. For a long time it was thought that women and girls couldn't be ASC and it's something that I think is still a struggle to have accepted, especially when one is older. I've been told I must be good with tech, because I'm ASC and all people with ASC are good with tech, I feel like my diagnosis is being called into question because I don't fit the stereotype. I have problems wih memory, somethings get stored straight to long term memory without ever being in short term memory, so there's no synaptic links whereby I can access this information. I know I have be shown numerous times how to C&P, but everytime it's like the first and I struggle through it step by painful step, then forget it again straight away, thats when people get really frustrated and angry with me, they never stop to consider what it's like for me being this way, if they find it frustrating, how do they think I feel?

    I've often been told I'm contrary, aggressive and playng games. I think some of this is because I ask questions instead of passively accepting whatever I'm told. When you link that in with the above memory problem, it becomes really fraught and I'm not believed. Some people are totally unwilling to adapt how they teach or explain things, I've had various people over the years give me different coloured overlay sheets to counteract the dyslexia, they get really cross when I tell them they don't work for me. How many times do I have to try and read things through different coloured overlays before somebody actually believes that they dont' work and I'm telling the truth?

    I think social class can play a big role too, having failed at school and been brought up working class I found that there were expectations about what I could and couldn't be expected to do. I learnt to speak "posh" and that really messes with their heads, I can actually understand and use big words, I can discuss things in their own language and believe me it makes a hell of a difference to how you're treated.

    A Guardian reading hairdresser with a degree really messes them up, they dont understand how I could do both and don't seem to know how to engage with me.

  • Another thing are the words used to describe us and how we are, words like "disregulated", what psychobabble! I know I've been told I'm wrong and obviously I disagree, but to me that word comes across as patronising, dismissive and alienating. TO me it's posh for "I don't like what you're saying, I'm uncomfortable with your emotions, your feelings of frustration, anger or grief are invalid!". Does anyone ever tell you how you're supposed to feel? Are your feelings ever valid? Are your feeling natural and normal under the circumstances?  

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  • Another thing are the words used to describe us and how we are, words like "disregulated", what psychobabble! I know I've been told I'm wrong and obviously I disagree, but to me that word comes across as patronising, dismissive and alienating. TO me it's posh for "I don't like what you're saying, I'm uncomfortable with your emotions, your feelings of frustration, anger or grief are invalid!". Does anyone ever tell you how you're supposed to feel? Are your feelings ever valid? Are your feeling natural and normal under the circumstances?  

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