Your thoughts on the BBC Horizon Autism documentary, presented by Uta Frith, on Tuesday the 1st April

I watched this last night, and again today.

What are your thoughts on the programme?

Parents
  • I've seen many posts on here where children are not being diagnosed, despite strong evidence to suggest otherwise.  The horizon programme discussed this, starting that if the traits did not cause significant social issues then clinicians do make a judgment call on this.  

    If  this is the case, the clinician should instead  say yes the child has autism, but is coping well so we don't feel any intervention is required.

    Not giving a diagnosis because the child at that time is coping, doesn't mean that they will still be coping later on, chances are the traits will intensify as social interaction increases.

    Also without a formal diagnosis because clinician has made a judgment call could jeopardise the chances of a sibling being identified.  We know that having a sibling on the spectrum makes clinicians take diagnosis a bit more seriously, so judgment call cases are dangerous as they hoodwink the clinician into assuming that there is no genetic links.

    The whole judgement call thing worries me greatly, as we know how incredibly difficult it is to get anyone to 're evaluate cases anyway, this judgment call thing just adds another hurdle that in my opinion should not exist in the first place.  You either have asc or you don't.  As they said in the programme, you could go down the road and get a different judgement call, and  then you are left with two conflicting opinions.  What is the point of having assessments if  all it comes down to at the end of the day is what the clinician thinks is significant or not, based on the past and not the future.

    Oh yes, how does someone with O-10 traits present.  I know what severe asc looks like but I am struggling to see the other end of Cohen's bell chart.  

Reply
  • I've seen many posts on here where children are not being diagnosed, despite strong evidence to suggest otherwise.  The horizon programme discussed this, starting that if the traits did not cause significant social issues then clinicians do make a judgment call on this.  

    If  this is the case, the clinician should instead  say yes the child has autism, but is coping well so we don't feel any intervention is required.

    Not giving a diagnosis because the child at that time is coping, doesn't mean that they will still be coping later on, chances are the traits will intensify as social interaction increases.

    Also without a formal diagnosis because clinician has made a judgment call could jeopardise the chances of a sibling being identified.  We know that having a sibling on the spectrum makes clinicians take diagnosis a bit more seriously, so judgment call cases are dangerous as they hoodwink the clinician into assuming that there is no genetic links.

    The whole judgement call thing worries me greatly, as we know how incredibly difficult it is to get anyone to 're evaluate cases anyway, this judgment call thing just adds another hurdle that in my opinion should not exist in the first place.  You either have asc or you don't.  As they said in the programme, you could go down the road and get a different judgement call, and  then you are left with two conflicting opinions.  What is the point of having assessments if  all it comes down to at the end of the day is what the clinician thinks is significant or not, based on the past and not the future.

    Oh yes, how does someone with O-10 traits present.  I know what severe asc looks like but I am struggling to see the other end of Cohen's bell chart.  

Children
No Data