Thoughts on possible alexithymia.

Something that came up in my recent assessment (leading to diagnosis) is a trend of becoming physically unwell when being away from home overnight or in unfamiliar situations.

My mum described repeated stomach aches/being unwell when I went away for residential trips as a child. Apparently I used to tell friends/teachers but wouldn’t feed this back to my parents who’d hear it from others.

As an adult I’ve had similar issues; I’ve had a number of “reactions” when out for meals which I’ve put down to food sensitivities (friends’ birthdays, a meal just with my mum for my 40th though this was at a fancy restaurant!). I was in hospital on my first holiday away with a friend, again for a weird sensation and “seizing” of my hands (they put down to dehydration but though we’d only been there for one day) and I’ve had physical symptoms of blurred vision and gastro issues on occasion when I’ve been super stressed……. I’ve had investigations, everything has been clear.

I‘ve always been fiercely independent and bloody minded, I like to prove I’m capable of anything and have always, right from a young age, had an overwhelming desire not to worry people (yes, I’m a late diagnosed highly masking adult female!). I can’t recall being consciously worried about these occasions or trips beforehand and they’ve always been with people I’ve known and trusted.

Does this sound familiar to anyone? I’ve been reading a lot about Alexithymia and certainly my mum has been reflecting on this a lot since assessment. Could this be a misidentification of anxiety or stress? Am I not as tuned into my body as I think? Have definitely had multiple burnouts in the past and wondered if I learn to identify sensations more, I could potentially manage this a bit more effectively.

Thoughts or shared experiences gratefully received. 

  • I have similar things. The most recent example is that I pulled a muscle (not badly) and didn't realise until the pain got so bad that I felt like I was going to be sick. The feeling sick came before me realising that I was in pain.

    I have lots of stomach issues due to intolerances.

    When I was a boy I had a fractured toe that was diagnosed months after the injury. I come from a very loving family, but still didn't think to bother anyone about it for a long time.

    I also had to have my appendix out as a boy. It was only caught in time thanks to my mum because the doctor didn't think that I was showing signs of pain. Only my mum knew that the more pain the less obvious I made it. 

    (In the interest of balance. I can also moan and make a fuss of a very minor injury Rofl)

  • The worry about bothering people is there my whole life till this day. Feeling unwell in various situations too. It took me years of my life to realize why I had panic attacks and crying without reason. These problems disappear when I cover my ears. I was diagnosed various disorders, problems, disease and fed medications with side effects but no help. It’s awful feeling when I hysterically cry and have no idea why. There is nothing to worry, no problems, everything is objectively fine but I sit and cry and can’t calm down until I cover my ears. It happened at work few times recently, my colleague himself reminded me about covering my ears. I started crying when he opened a bag of biscuits, that was the last trigger. There were years of wondering why I’m like this why I cry randomly without any reason, especially when others talk and laugh loud. I’m not diagnosed with autism, but probably on my way to that. As it explains a lot. My hearing test result show I hear from 5Hz. The doctor at that time, 10 years ago said it’s not normal and I should have myself tested. But she didn’t say where and by which specialist. I failed to ask, as I came to my mind with a delay (like always) and then I ignored that. 
    iI often struggle to identify what I actually feel, it takes me time and a lot of energy to analyze and find the reason or explanation. I’m some cases even decades.