Please HELP!

Hello all, 

The short version of our story so far…. My child had just started nursery back in 2016 when it was noticed by teachers she was expressing traits relating to ASD.

She was referred by her GP at this time. We began attending various appointments at the local paediatrics hospital, and all reports said the same thing. She was indeed showing traits of autism and that she would be going to panel for diagnosis.

Fast forward to today. She’s 11 and has just started high school. she is struggling with various aspects related to her autism and has also expressed ‘she’s hopes she dies’. Without diagnosis she has very minimal support and it’s beginning to take its toll. 

I am still waiting for her case to be heard at panel! It’s been 8 years and not one professional has told me why it has taken so long! I’ve had various apologies and recognition that she had been ‘let down’ but we are still no closer! I’ve lost all hope and patience and I need help but don’t know where to go or who to ask. 

I’ve raised this with PALs twice but no one is reaching out with any useful information or answers. 

Can anyone offer any advice? I’d be very appreciative 

Parents
  • Hi

    Really sorry to hear of your story. That should never happen to a young person or anyone really. My main focus for my son was to get the diagnosis before high school and it sounds like that was your preferred route.

    I did a right to choose pathway for my son with Clinical Partners, it was a 7 month wait and they are NHS affiliated. I have literally just got a referral from the Gp’s for myself today. From what I can gather the wait is 7-10 months now but at least you will get the assessment your daughter needs.

    Good luck

Reply
  • Hi

    Really sorry to hear of your story. That should never happen to a young person or anyone really. My main focus for my son was to get the diagnosis before high school and it sounds like that was your preferred route.

    I did a right to choose pathway for my son with Clinical Partners, it was a 7 month wait and they are NHS affiliated. I have literally just got a referral from the Gp’s for myself today. From what I can gather the wait is 7-10 months now but at least you will get the assessment your daughter needs.

    Good luck

Children
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